Any advice for flying to +having treatment in Poland (AMEDS)

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Any advice for flying to +having treatment in Poland (AMEDS)

Postby adamt » Tue Aug 10, 2010 5:53 am

Hi all,

Im going to Poland soon for CCSVI testing & treatment , as i had a false negaive catheter venogram


I was wondering is there any tips/advice for someone flying to and having testing/treatment in Poland please?

also anyhing i should ask/request fopr the testing/reatment?


thank you
Adam
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Postby esta » Tue Aug 10, 2010 10:26 am

hi adamt
i'm returning to katowice poland since i have restenosed. i would like to ask them to sit me up when they ck my azygos vein, because i am PPMS and i read that position shows any abnornalities more.. i'd also ask them if you could get a stent the first time because of in general.
our flight was great, and i'm in a wheelchair..travelling so far, but that depends on your condition, and how you feel about stents .just arrange lots of time in frankfurt for transfers..
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Postby adamt » Tue Aug 10, 2010 2:59 pm

thanks esta for the tip,

does anyone else have an advice please?
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Postby whyRwehere » Wed Aug 11, 2010 1:50 am

I have no tips adamt, but I am looking forward to hearing how things go for you. When should I check back for an update?
Good Luck,
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Postby mila77 » Wed Aug 11, 2010 6:09 am

hi adamt,

I am wondering when u will be at AMEDS?
I already had my CCSVI treatment done in Euromedic Katowice, nothing good came out of this one. And now I am scheduled for the visit at Ameds to ask for the second opinion.

Mila
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Postby adamt » Wed Aug 11, 2010 2:35 pm

im sorry but i dont want to reveal the dates but it will be soon
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Postby garyak » Wed Aug 11, 2010 6:12 pm

Best wishes, keep us updated.
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Postby larmo » Thu Aug 12, 2010 7:02 am

adamt wrote:im sorry but i dont want to reveal the dates but it will be soon


I'll reveal my date. My Liberation will be done on the 25th this month at AMEDS. I've read great things about this team.
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Postby mila77 » Thu Aug 12, 2010 8:29 am

larmo wrote:I'll reveal my date. My Liberation will be done on the 25th this month at AMEDS. I've read great things about this team.


And I am gonna be at Ameds this Sunday, August 15, but only for the diagnostic tests. Then we will see :-)
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