This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi all,

Im going to Poland soon for CCSVI testing & treatment , as i had a false negaive catheter venogram


I was wondering is there any tips/advice for someone flying to and having testing/treatment in Poland please?

also anyhing i should ask/request fopr the testing/reatment?


thank you
Adam

hi adamt
i'm returning to katowice poland since i have restenosed. i would like to ask them to sit me up when they ck my azygos vein, because i am PPMS and i read that position shows any abnornalities more.. i'd also ask them if you could get a stent the first time because of in general.
our flight was great, and i'm in a wheelchair..travelling so far, but that depends on your condition, and how you feel about stents .just arrange lots of time in frankfurt for transfers..

thanks esta for the tip,

does anyone else have an advice please?

I have no tips adamt, but I am looking forward to hearing how things go for you. When should I check back for an update?
Good Luck,
Why

hi adamt,

I am wondering when u will be at AMEDS?
I already had my CCSVI treatment done in Euromedic Katowice, nothing good came out of this one. And now I am scheduled for the visit at Ameds to ask for the second opinion.

Mila

im sorry but i dont want to reveal the dates but it will be soon

Best wishes, keep us updated.

I'll reveal my date. My Liberation will be done on the 25th this month at AMEDS. I've read great things about this team.

And I am gonna be at Ameds this Sunday, August 15, but only for the diagnostic tests. Then we will see