Social media drives Multiple Sclerosis controversy

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Social media drives Multiple Sclerosis controversy

Postby MSUK » Wed Aug 11, 2010 1:34 am

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Feeds acrimony over liberation treatment, but also forces researchers to respond.

A controversial treatment that promises relief from the daily torment of multiple sclerosis has created a deep rift between its proponents and those who say it doesn't work.

Helping drive the controversy is social media, where it can be difficult for people to determine the truth.... Read More - http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2954
MS-UK - http://www.ms-uk.org/
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Postby sbr487 » Wed Aug 11, 2010 2:09 am

Some gems:

"Physicians can't honestly say this doesn't work because if you hold them to their own standards, they have no evidence to say it doesn't work," Leier said.


"Premier Wall in Saskatchewan made an excellent decision to fund clinical trials," he said. "I think that was politically ingenious on his part. But it was also a very humane gesture as well."


"You don't get that balance of testimony," he said. "Negative findings are just as important as positive findings, but negative findings have always been historically under-represented in publications."
A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck
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Postby Cece » Wed Aug 11, 2010 10:05 am

Great quotes.
"You don't get that balance of testimony," he said. "Negative findings are just as important as positive findings, but negative findings have always been historically under-represented in publications."

This makes me glad we have pklittle's thread, for non-results or worsening results or slow results, because we need both sides of the picture. (And I hope as the doctors increase their skill, the results will improve as well.)
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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