.."read it in the paper, so it must be true"

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby 1eye » Sat Aug 14, 2010 4:53 pm

concerned wrote:I just haven't heard many people getting angry about pro-CCSVI articles I guess. I agree that impartial reporting is the ideal, but in a world where fox news is 'fair and balanced' I don't think there's much hope for that.


There have been a couple of such articles, and I admit, they have not made me angry; sorry to disappoint. The reasons I have for being angry about anti-Liberation press is that I could understand well-researched argument, and this position does have points, behind all the smoke and mirrors.

But these articles don't typically have an argument you could sink your teeth into. They are blind rehashes of talking points passed on from people whose motivations and qualifications are questionable at best. In short, they are not journalism in *any* way. I get angry at the sheer nihilistic sensationalism, and blind indifference to any rational thought on the subject, blind toadying to "authorities" so full of themselves that they are in danger of fundamental disappearance.

This is my life they are writing about. These newpaper neigh-sayers can't see beyond their next paycheck.

In Canada follow-up treatment should be available, from qualified interventional radiologists and vascular surgeons. Like Liberation itself, it is being denied, as if denial itself absolves the denier, and will make the problems go away. Even if you think Liberation is superfluous, these people should still have medical treatment. Are they being punished for their sins?

There is a fundamental lack of awareness that there are people dying every day, lots of them, whose lives could be saved by the Liberation procedure. In that sense it is very much like the blood scandal, where part of the strategy was to wait for the plaintiffs to die off.

But I still don't feel divided. Do you? No, I thought not. Good. I think solidarity is the only way to go. Even if it really is your time to go.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby CureIous » Sat Aug 14, 2010 7:48 pm

scorpion wrote: Propaganda is defined as :Propaganda is a form of communication that is aimed at influencing the attitude of a community toward some cause or position. Hmmmmmm....


Don't drink but will buy a round anyways.

I like the def. of propaganda though, that fits for both sides of the equation. Or put better, not all that glitters is gold...
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby CureIous » Sat Aug 14, 2010 8:00 pm

concerned wrote:
I just haven't heard many people getting angry about pro-CCSVI articles I guess. I agree that impartial reporting is the ideal, but in a world where fox news is 'fair and balanced' I don't think there's much hope for that.


I've seen much vitriol lobbed at the pro-ccsvi camp/articles, which granted, are precious few nowadays. Heck I don't even know how one could classify any article (and I presume that to mean a news piece from a news organization, or a statement from an "official" source, not blogs) as pro or anti anything, even the positive ones seem to put the negative events related to CCSVI in there front and center.

So few journalists left it's barely even worth discussing any more. There is no such thing as impartial reporting, even dry recitation of facts can be biased, depending on which facts you choose to insert. Spin as it's called.

My guess, there are very few passionate non-believers and the other large percentage of fringe to center mass of believers are quite the opposite. After all, it's difficult to maintain a passionate position of not believing something. It's like you could sum up your position in one sentence with little more explanation needed... ;)
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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