This Is MS Multiple Sclerosis Community: Knowledge & Support

“Journalists do not live by words alone, although sometimes they have to eat them”
Adlai E. Stevenson

<---Winner of today's 'Preposterous Penguin' award

http://www.vancouversun.com/health/wast ... story.html

Paula Simons (columnist)
(780) 429-5266 psimons@thejournal.canwest.com

Wow, what are the credentials of the person signing this piece? Is she a neuro, a scientist of some sort?

The title of the piece is "Don't waste medical research money chasing unicorns"




What is her definition of legitimate local research? I better ask her...

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Diagnosed with Transverse Myelitis in December 2008. Inflammatory demyelination of the spinal cord (c3-c5). No MS, but still CCSVI.

Maybe I should stop responding to this stuff. Deaf and dumb people everywhere. The press ain't what it used to be. "And what's more it never was." -Lee Hays

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

more ink for CCSVI . Great

Tomorrow ..... that article will have a proper use ..... wrapping fish

As can be detected by the tone ...... someone is panicking at the notion of CCSVI taking hold..... Unicorns .... really .....

Most important of all to remember : Newspapers and the media in general ...... must generate CONTROVERSY .... and SENSATIONALISM .... in that they may sell their product.

I do agree with ONE thing in the article . Research funds are to be used wisely . And based on what has evolved in the CCSVI world so far ......

The money spent on CCSVI is worthwhile.




Mr. Success

that was originally in an edmonton paper . i'm guessing they copied it to irritate and sell papers . that name Paula Simons is burned in my brain . what a witch .

An award winning witch ;

http://www2.canada.com/edmontonjournal/ ... imons.html

Someone is feeding her crap and she is eating it.

I guess the new enemies are the journalists?

What is disconcerting for me is she seems to be a very successful writer and most likely has a good sized readership and yet spews this crap. How do these people come with these bizarre conclusions?
I think her opinion was just for trying to be sensational and in the process looks foolish IMO. I like a lot of reporters who write like this

http://www.torontosun.com/life/healthan ... 12086.html
less bias and more professional.

Wow. A witch for expressing her opinion? You guys just keep pushing people away....

Doubt anything I would say to her or about her would push her or anyone "away" . Her opinion reeks of propaganda it's so distorted and misleading. Her opinion to her blind following is more deadly than your stinger .

So if it's against CCSVI, it's propaganda. If it's for CCSVI, it's...?

Oh wait, I read about CCSVI in the newspaper so it must be true.

it's...placebo

not what I'm saying at all.

First of all I loved the stinger statement! The feeling is probably not mutual but I think I would love to have a couple of beers with some of you guys. Propaganda is defined as ropaganda is a form of communication that is aimed at influencing the attitude of a community toward some cause or position. Hmmmmmm....

I would enjoy shooting it over a few beers -seriously . I gave up alcohol in march because my ms was way worse afer a drink. Maybe my alcohol intolerence will improve post liberation:)

pcakes, i just gotta tell you, i love your penguins!! the little fellow that keeps getting slapped in the back of the head reminds me of me and life after i got ms. we trudge ahead -get slapped down-but we stand back up to life even if we are in wheelchairs-get another slap upside the head-and we keep on a going somehow. let's all keep the faith that ccsvi treatment will soon be what slaps ms upside the head and it will never raise it's ugly head again.