THANK YOU TO THE HEROES!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

THANK YOU TO THE HEROES!!!

Postby codefellow » Fri Aug 13, 2010 11:00 am

FOR EVERY ONE OF YOU WHO DECIDED TO STEP FORWARD INTO THIS NEW FRONTIER, TAKING A VERY PERSONAL RISK, YOUR ADMIRABLE COURAGE MAKES IT THAT MUCH EASIER FOR THOSE WHO WILL COME AFTER YOU!


SO THANK YOU ALL!!!
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Postby Downunder » Sat Aug 14, 2010 8:16 pm

I'll second that wholeheartedly!!
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Postby Chrystal » Sat Aug 14, 2010 10:03 pm

I add my heartfelt thanks too!!!
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Postby Johnson » Sat Aug 14, 2010 10:51 pm

I am not sure if that gratitude is towards those who have been treated, or to the first adopters at Stanford, and I can only speak for myself, but I am no hero. I am not brave. I feel incredibly fortunate to have been number 515 @ Euromedic, and I would have felt just as fortunate to have been number 1 (that was Rici), or number two (that was Erika). I feel incredibly lucky to have had the funds to do it. Although I would like my statistics to help move this forward so that anyone with CCSVI can have the procedure in a city near to where they live, it was always about me not suffering anymore, and I would step on anyone to be first in line. I actually feel a little bit guilty that I am going for a second procedure before many have had their first. I am glad to read of everyone who has the procedure, and a part of that is that the doctors are gaining knowledge with every intervention. I don't feel brave, or heroic, I feel lucky.

I am sorry to those waiting, and to those who do not have the funds. That takes more strength and courage, IMHO. I am also very grateful to people like Chrystal - who takes on the MSSC, and holds them to account, and for the "Stanford Pioneers" like Rhonda, Mark, Loobie, and Joan Beal, et al, for putting themselves forward and out, that we might all have a chance at health again, when they could just go on with their lives. I could mention a dozen others here as well, and still miss scores.

I appreciate the sentiment - even if not inclusive of me, but I can say that I am no hero.
My name is not really Johnson. MSed up since 1993
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Postby BooBear » Sun Aug 15, 2010 12:00 pm

The thanks go to the doctors who bravely perform this procedure for our benefit. I had tears in my eyes when I thanked Dr. Englander. I pray that all of us can get this done...soon!!!!
Three veins angioplastied.  One renewed life.  
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Postby Cece » Sun Aug 15, 2010 12:04 pm

Lots of heroes here, no doubt about it.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby 1eye » Sun Aug 15, 2010 12:45 pm

Although early on there was one grave loss and one terrible misfortune, I would say these doctors are the best of people, and this movement has had a lot of success because of them. There has also been success because of very determined patients. My thanks to all. I'm sure there has been some heroism, sung and unsung. We'll find a way to memorialize because this group of people has oodles of competence (I just keep misplacing mine). I am scheduled very soon, but I'm still concerned about the ones who can't speak for themselves or do very much or are on the verge of suicide. Please, there has never been so much hope, just hang on. It's coming. For real this time. :D 8)
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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