My MRV images from Hubbard Foundation...

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

My MRV images from Hubbard Foundation...

Postby ikulo » Fri Aug 13, 2010 3:39 pm

look super (relatively speaking). Spoke with Devin this morning and I have very low flow in my lower jugulars, and the high right side has poor flow (as can be seen with the stenosis on that side, just below my ear).

Here are the images:

http://img291.imageshack.us/i/013d115f.png/
http://img237.imageshack.us/i/01462a98.png/

Everyone at HF was great. Hopefully I will be scheduled for liberation in the next few weeks.

EDIT: check out those collaterals!
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Postby garyak » Fri Aug 13, 2010 4:03 pm

What date were you tested?
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Postby ikulo » Fri Aug 13, 2010 4:13 pm

I was there yesterday.
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Postby CureIous » Fri Aug 13, 2010 5:00 pm

"nice stenosis".
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby selkie » Fri Aug 13, 2010 8:07 pm

Will your medical insurance cover the testing images?

Where do you get the procedure done?

best wishes for your upcoming procedure!
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ccsvi

Postby blossom » Sat Aug 14, 2010 9:44 pm

ikulo, so glad you are getting started. i'm sure you are in good hands and the hubbards are gonna contribute a lot to figuring out this puzzle from hell ms. dr. hubbard is so intelligent and on the ball with this. this is up close and very personal for him. but we will all benefit. amazeing, how doctors are slow at getting on board but the ones that have stepped up are truly the best of the best and top of the line in every way. like they say "birds of a feather flock together." i feel really we are and they are gonna rewrite and change a lot in the field of medicine-whether mainstream likes it or not. besides, if i was young and single and had ms i'd make sure i'd make it to hubbards-"that devin is a cutie." had to add that. but sincerely "hats off to the hubbards" and the very best wishes in your journey to wellness.
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Re: ccsvi

Postby Cece » Sat Aug 14, 2010 11:40 pm

blossom wrote:"that devin is a cutie."

Lol, all I've seen is his childhood pic (facebook) but that one's adorable so maybe he grew up nice? :D
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby AlmostClever » Sun Aug 15, 2010 3:21 pm

Congrats on your bad veins!

:?: : Can you uuse your viewing software to measure your vein diameters and post back on here?

I'm just curious to see what people's veins measure. Pick an unstenosed region...

Thx!

A/C
If you can't explain it simply, you don't understand it well enough. - Al Einstein
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Postby walcat » Sun Aug 15, 2010 8:17 pm

Congratulations! I hope everything works out for you. I heard from Devin a few days ago, and I'm now waiting for my date from the Hubbard Foundation. Can't Wait!!! :D
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Postby garyak » Sun Aug 15, 2010 8:58 pm

walcat they treated me very well.
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