Finally Liberated

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Finally Liberated

Postby Kuly » Sat Aug 14, 2010 6:08 pm

Went to Warsaw,Poland to have testing then liberation on 10 Aug. Upon testing I was 70% stenosed on the right jugglar and 80% on the left they were able to balloon both sides but my neck is very sore on the L side, apparently the azygous was fine. So far have not had miraculous results but after 15 years plus of this illness have noticed less brain fog and improved bladder function but am off until September and plan on physio and light work outs.

Am from close to Calgary,Canada and waited and waited for Canada health to wake up and recognize this treatment but realize am running out of WAIT so put on credit and went. AMEDS gave me CDs of my MRI and procedure but realize will need testing down the road and have to pray for no restenosis.My Dr was supportive of my treatment WTF

Feel badly for those who financially can not afford to have this, MS aside it is vascular fix the damn thing this pissing contest by the neuros looks like they are worried over being inept all these years and the law suits that may follow.....disgusted in Alberta andv Health Canada.


Kuly 8) 8)
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Postby sgriff » Sat Aug 14, 2010 7:11 pm

So happy for you Kuly! My husband was also liberated on that same day! He has had MS for over 30 years. His results are somewhat subtle too, but I was so excited tonight when I realized that he did not pick up his leg to get into my car!!!!

The important thing is that you seem to have had some response to the treatment and you will likely see continued improvement. I am excited for both of you!
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Postby blossom » Sat Aug 14, 2010 7:13 pm

congrats!! i wish you the best. what type ms do you have? please keep us informed.
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Postby Shueywho » Sat Aug 14, 2010 7:45 pm

Wishing you continued results. Congratulations Kuly.
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Postby naychergirl » Sun Aug 15, 2010 6:02 am

Congratulations Kuly!
I pray that you see positive results every day. Ijust had my MRV, and I am waiting for a date. And I am really looking forward to any kind of relief!
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Postby bluesky63 » Mon Aug 16, 2010 10:20 am

Kuly, congrats to you! I'm so happy to hear you've seen improvement in symptoms! A clearer head, better bladder -- these make a genuine difference! :-) I also did not have "miracles" but noticed definite improvements that mattered to me. I think when we've had MS for so long, these things are great, and it can take months to address all the other damage.

All the very best to you -- take good care of yourself as you start your recovery! :-)
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Postby erinc14 » Mon Aug 16, 2010 12:46 pm

neuros looks like they are worried over being inept all these years
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