This is part of a mail I sent a friend who asked me what he may expect from the 'Liberation Treatment':
Dear,..., bare in mind that my story is N=1. I truly believe (believe, not know) that MS is not a decease but a basket of symptoms that have many different causes. Not every animal with 4 legs, a tail and long ears is a donkey. In the same token, not every 'MS' is the same 'MS'. In one case the cause could be a bacterial or a viral infection, in another it may be an immune system that went crazy, a genetic disorder or perhaps CCSVI. And perhaps many other things too. This is why MS research is so elusive and the disease outcomes are so different for different people. Following this logic, no surprise that the response to treatment is very different from one person to the other. Then comes the next complicating factor that if you bombard the meyaline producing cells long enough, the original disease transforms into again a different disease that hardly responds to known treatment.
Long introduction, but what I am really trying to say is that whether or not MS is caused by CCSVI is not yet proven, neither in general nor in individual cases. And the reports on the effect of CCSVI treatment are all over the place; from no change, through some improvement for 3-7 weeks and back to square one, to remarkable and lasting improvements. RR people seem more likely to see improvement and SPMS and PPMS less likely. Where this leaves you and what you may expect from this treatment is a complete unknown.
In my case (SPMS for 3 years), I saw some improvement in vitality, walking, libido, erection and warn hands and feet for about 10 days. Except warmer hands and feet, all is gone now. Why, I really don't know. I had no stenosis but faulty valves. Was it a placebo effect, or will the effect of the treatment amount to nothing more then stopping the disease? Or are the valves screwed up again, I just don't know. Only time will tell and I guess no one knows, not even Prof. Zamboni. In summary, if you can afford to do the treatment, why not, you have nothing to lose. My recommendation is not to rush into stenting. First see whether the treatment has a real effect that lasts longer then 10 days to rule out placebo. If it does work you can always consider stents.
I hope this is not discouraging, it is not my intention. I am past the point in life where I can give you anything but my honest and realistic point of view.