scorpion wrote:Man sometimes reading this CCSVI blog can be depressing. Do you guys really see the world in such a bleak way? I mean you make it sound like the world has become a place of people who are only self-serving and profit driven(of course excluding vascular specialists). Do you perceive yourselves this way or have you taken the higher ground? I also get disgusted when I read some of the stories about greed and corruption in the newspaper and on TV but I think generally people try to live good moral lives.
Concerned I am not sure what it is but 1eye goes into a tailspin over spelling errors. The interesting thing is that it only seems to bother him when the misspelling is in the post of someone considered a CCSVI skeptic. I don't know I just always looked at it as a scream for attention.
BooBear wrote:Why would anyone spend energy on anything other than what they view as an option to get better?
sbr487 wrote:BooBear wrote:Why would anyone spend energy on anything other than what they view as an option to get better?
Someone here made a very good observation that despite having MS, they sound as if they really they don't want a new theory to work. Is it just CCSVI?. Now tell me how many patients you have seen that don't want sure for their disease?
Of course, the normal escape route is ... you guessed it ... "I want "scientific" study"
BooBear wrote:Scorpion, I did not paint you or anyone else as a troll. Nor do opposing views to the theory make me uncomfortable. And I believe I stressed that you are entitled to your opinions. I can't see where I devalued your character at all.
My observation, on the contrary, is my own opinion. I would assume that everyone that struggles with this disease wants a cure. Period. Now, if you believe CCSVI is part of that answer, it would make sense to devote a lot of time to this board to get the answers you seek. But if you really don't believe that CCSVI is the answer, power to you; wouldn't your energy, then be better spent finding something that you can believe holds the answer for you? As I stated in my post (clearly), I can't wrap my head around why anyone would want otherwise.
No questions, by the way, make me uncomfortable at all. But there are questions and there are challenges- some topics do warrant both, but not every single topic. Personal experiences, positive or negative, as an example, I don't ever challenge. Because I have no right to challenge someone's personal experience. Unfortunately, I have not seen the same in response on some of the posts that I have read.
I'll point out gently that it was not me who said that people on this board may "see the world in such a bleak way". Or to comment that someone "goes into a tailspin" over a misspelling by a CCSVI "skeptic". Nor did I say that your posts were a "scream for attention." Someone did say those things, though.
What I spoke was my opinion, clearly stated as such. I was not disrespectful. I called no one any names. I stated an opinion based upon my own personal observations. Clearly, a pro-CCSVI poster can have opinions and observations, too?
BooBear wrote:I just know that if I were in their shoes, and I really thought this was all bullshit, I would not waste my time.
concerned wrote:I think that comparing us to children kind of devalued our characters.
BooBear wrote:concerned wrote:I think that comparing us to children kind of devalued our characters.
I said the behavior was like a tired child, not the people. I can't help it if you made the alternate parallel, but it was not intended as such.
Users browsing this forum: Rosegirl