Message from Augusto Zeppi, Vicepresident of Hilarescere Fou

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Message from Augusto Zeppi, Vicepresident of Hilarescere Fou

Postby PCakes » Tue Aug 17, 2010 9:49 am

hijacked from ccsvi 'facebook' a loose translation c/w Joan Beal's response.. with thanks

Message from Augusto Zeppi, Vicepresident of Hilarescere Foundation, ItalyMessaggio di Augusto Zeppi, Vicepresidente della Fondazione Hilarescere. 16 Agosto 2010 Augusto Zeppi, Vicepresidente della Fondazione Hilarescere <shortened url> : <[url=http://www.facebook.com/posted.php?id=139997017782&share_id=136965973012229&comments=1#s136965973012229]shortened url[/url]> "Quanto qui scritto da più persone, avendo avuto un triste effetto disorientante sulle as...
By:CCSVI nella Sclerosi Multipla
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Peggy Connolly, Lorin Powell and Pontoni Franco like this..
Alessandro Rasman Augusto Zeppi, Vice President of the Hilarescere Foundation
http://www.fondazionehilarescere.org/:

"As written by several people here, having had a sad disorienting effect on the expectations and subsequent decisions require some clarificati...on on what is the reality of objective things. This is written very clearly in the literature on the Foundation website (www.fondazionehilarescere.org) and that there will still be remembered for completeness.

There is no magic wand, but rigorous studies and publications clear.

The pilot study (open label) was published only 7 (seven) months ago to 18 months had effects on the sample considered, it was observed as CCSVI (chronic cerebrovascular insufficiency cord), an autonomous vascular disease, was also a factor so inextricably associated with Multiple Sclerosis by proposing the treatment even on patients with this disease, alleviate symptoms and improve aspettative.Da this point of view the treatment of CCSVI is proposed as another weapon in the fight prior to disability, NOT treatment of disabilities achieved over the years. In these cases, treatment is proposed as a brake all'incedere progression and as a significant factor in improved symptoms that undermine the quality of life in MS patients.

THE ROUTE

The scientific results and the care with which that opportunity has been grasped by the public and by some regional governments (if confirmed in the manner provided internationally, would have a very significant impact on the lives of sick people and then on the burden for community cost 2.4 billion euros in 2009 in Italy the disease) have meant that we have created the need, both in our country than in other nations, to achieve adequate studies confirm that, if successfully concluded, would all to have free access to this trattamento.Il first study, as required by the rules of the international scientific community will be randomized and double blind, was designed by a committee established by the Emilia Romagna and will be submitted to the Ethics Committee of the Hospital 'University of Ferrara in late September. Will take place in other Italian hospitals in the process of identification which will be a multidisciplinary team to work towards free inquiry. This study has a mandate to prove the importance or not of treatment so that, if successfully concluded, grant the same can be performed within the NHS. The motivation to participate and to protect it follows, then, by the fact that this and similar studies are needed to demonstrate that treatment of CCSVI is an even more complete in the treatment of the disease that it is related in our experience Sclerosis multiple.

THE CURRENT SITUATION

The intervention of vascular angioplasty and internal jugular vein azygos vein, the so-called liberation procedure can be performed by any interventional radiologist and / or vascular surgeon, with full assumption of personal responsibility and professional playing techniques described by Professor . Zamboni within scientific publications, they deliberately these techniques have been described in an absolutely completo.Everyone can then use them as the doctor / patient relationship a personal and private, protected by clear the rules.In 'have formed these techniques diagnostic and therapeutic DIRECTLY at Dr. Zamboni may be, however, as evidenced by appropriate certificates of study ONLY what specialty school diplomas, Masters or courses. Should be wary of who has direct collaboration with prof. Zamboni without being able to show this.

With its support for scientific studies Hilarescere Foundation, of which Dr. Zamboni and Dr. Salvi are founders, fulfilling its statutory function to promote the scientific and medical research in the field of disease etiology unknown or poorly defined, with standard diagnostic and therapeutic toothless on the quality of life of people who are affected, especially in the field of chronic and degenerative diseases of the nervous system and the vascular system. The same, also seeks the objective of supporting and promoting the dissemination of techniques for prevention, diagnosis, treatment and assistance to persons affected by these diseases, in collaboration with founding the University of Ferrara, has therefore established two university masters addressed to those doctors who wish to share the experience accumulated over the years. Other introductory courses of varying thickness were organized, always at the university center for vascular diseases of Ferrara, for purely diagnostic CCSVI.Ci are obliged, however, to further clarify, obviously, that the activities structuring training and collaboration, are still being defined. None, to date, it 'in Italy, it' in the world can legitimately claim to have been formed for the therapeutic or we do so in cooperation with us. Our only responsibility of the studies. And in the near future, those centers that ask us training and / or collaboration in this regard, the existence of which will report promptly on our site: http://www.fondazionehilarescere.org/


.CCSVI in Multiple Sclerosis Thank you, Alessandro. Augusto makes a very important point. Angioplasty cannot repair all of the neuronal damage from years and years of MS. This damage is like a stroke...angioplasty can only help stop future damage and heal the problems caused by venous insufficiency--such as fatigue, heat intolerance, dizziness, spasms, sleep and bladder issues. Patients need to protect their hearts and expectations. The sooner treated in the disease course, the better outcome. Joan
26 minutes ago ·
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Postby MrSuccess » Tue Aug 17, 2010 10:08 pm

I'm gonna have a BIG cup of coffee ... then do my best to get an understanding of this report.

At first blush ............. after a quick look-see ..... there is a lot important information to be gleened .

Of course if someone else can do this first ..... that would be great.


CL short response hardly covers what AZ is reporting .




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Postby PCakes » Tue Aug 17, 2010 10:22 pm

thank you MrSuccess!! I was hoping someone would take this on.. I'll put the coffee on...
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Postby MrSuccess » Tue Aug 17, 2010 10:44 pm

domani






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Postby PCakes » Tue Aug 17, 2010 11:18 pm

buona notte
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Postby MrSuccess » Fri Aug 20, 2010 10:50 pm

well ..... from what I gather .... Augusto Zeppi is preaching caution in regards to expected outcomes following CCSVI corrective repair .

I agree whole heartedly with him . Some of the claims made .... post treatment .... are confusing ....... and demoralizing to some pwMS ... when they do not get ..... what others report.

And worst of all .... the Liberation treatment looks ........ like something seen under a Big Top ........ when such grandiose claims are put forth .

I am certain Dr. Zamboni does not want this.

And , this only plays into the hands of the skeptics and critics . :twisted:

:idea: Let's be cautious when describing post CCSVI improvements :idea:

Augusto Zeppi also cautions having the procedure done .... by someone who has not been trained properly .... in Ferrara .

But it is difficult to grasp the information ......

I could be off the mark ............ :roll:





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