American CCVSI sites?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

American CCVSI sites?

Postby reece » Wed Aug 18, 2010 9:41 am

I was wondering the names and locations of U.S. doctors currently performing the CCVSI testing and procedure.

Thanks,

Reece
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Postby Hockeydad » Wed Aug 18, 2010 9:51 am

Guess you are new. On this site, people are wary of posting names and locations for fear of them being closed down. This has happened in the past. You should be more specific as to geography and maybe you'll get a pm.
RRMS since Feb , 2010. No drugs, just vitamins and exercise.
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Postby fogdweller » Wed Aug 18, 2010 10:15 am

There may be many more, and you may have some luck in interesting a local Interventional radiologist in doing the procedure in your immediate area, but lacking that, here are a few that I am aware of:

Albany, New York
very experienced but waiting list until March at this poiint;
(518) 262-5149

San Diego, CA
Hubbard Institute
available by e-mail only
Hubbardfoundation@gmail.com


Stanford University is allegedly doing a trial "soon". Don't know details.
IKromer@stanfordmed.org

Dr. Sclafani in NY is not yet treating but you can get on his waiting list. He is a God.
ccsvilibeation@gmail.com

In Orange County, California, the Pacific Center
(949)21-0129

There is also a thread on this forum, CCSVI Tratment available in the U.S., but it is already 45+ pages, some kinda old, and a bit much to sort through.

Hope this helps. As the last poster mentioned, a lot of the treaters aren't advertising openly, but someone being treated will probably be willing to PM you.

I am in California. If you decide where you are going, drop me a PM. Also if you find any other Caliofornia prividers beyond what I've listed above, let me know.
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