Before you schedule your venagram, discuss with your IR what will (or won't) be done. You should do lots of homework before your consultation because many doctors are finding out that we patients know a LOT more about venagrams for CCSVI than they do. Ask about stents, right vs. left entry through the femoral vein, etc.,
I had my venagram done before the July meeting in NY. The IR ignored my request to go through the left femoral vein even though I had given him the printout with Zamboni's rationale. I think he also skipped the part about looking for valve problems (since my symptoms can appear and disappear within less than a few minutes).
When I had my follow up meeting with the IR (after the NY meeting), I asked him if, based on what came out of that meeting, would he do anything different. He said he never even tried to find out what was discussed! His rationale was that, until findings are published in a peer-reviewed journal, they're just hearsay. From his perspective, that made perfect sense. But, especially since I have had no improvement, I'm upset that he didn't take a more aggressive approach based on the documentation I gave him before the venagram. He ballooned my azygos and I'm sure it's still open since my feet are no longer purple. But I got the distinct impression that he did as conservative approach as possible. Further, although the procedure gave me no benefit, my IR said there was nothing more he could do for me, at least until more was published about CCSVI - and we all know how long that is taking.
When I had my procedure. thee was only one place in town to to be treated for CCSVI. I gambled (about $4000 after insurance) that the procedure would help me. Now that there are several places in the area where I can get another, hopefully more successful, procedure, I plan to ask the next IR LOTS more questions before I schedule another venagram.
The NY meeting reinforced the fact that, even doctors with decades of experience are finding that CCSVI is a whole new ball game. Make sure you ask questions, and make sure you find out IN ADVANCE whether your doctor will do as you request. And if not, why not.