Guillain–Barré syndrome

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Guillain–Barré syndrome

Postby 1eye » Thu Aug 19, 2010 12:32 pm

My friend has a soccer-playing 19 yr old son who has been diagnosed with this. They want to give him the standard plasmapheresis and immunoglobulins. His mother has dormant CIS. I guess it gets priority treatment; he is still in hospital.

It is said to be triggered by an EBV infection. (too many Barr(e)s) He just had mono.

I don't want to make trouble for anyone here; does anyone here know if this is possibly treatable also with Liberation? I'd be obliged.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby Rieja » Thu Aug 19, 2010 1:43 pm

My father has it currently. I also know 3 people that had it in the past. I do not know enough about it to claim any CCSVI link.

I do know that the 3 people that had it, all recovered. It just takes a long time. My father is doing well also but we think it will be about a year before he recovers fully. Everyone says it just a long recovery process.



(for those keeping tabs on me: me=MS, one bro=AVM in head resulting in stroke at age 33, father=GBS - all Dx in less than year. It's a good time in my family :P )
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