ccsvi tracking website : Chronic Cerebrospinal Venous Insufficiency (CCSVI) - This Is MS Multiple Sclerosis Community: Knowledge & Support

View unanswered posts | View active topics

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

ccsvi tracking website

Page 1 of 1

[ 4 posts ]

Print view

Previous topic | Next topic

Author

Message

Cece

Post subject: ccsvi tracking website

Posted: Sun Aug 22, 2010 11:52 pm

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8556

Anyone know anything about this site? Or want to add your data to it? I'd be interested in seeing the "aggregated graphs" once they are available.

http://www.ccsvi-tracking.com/index.php

Top

CureIous

Post subject:

Posted: Mon Aug 23, 2010 12:10 am

Family Elder

Joined: Tue Jul 14, 2009 3:00 pm
Posts: 1157
Location: Riverside, CA

Oh great, yet another internet site by an anonymous source that wants all of our information inputted. Do we have any idea who started this site?

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap

Top

Frank

Post subject:

Posted: Mon Aug 23, 2010 9:47 am

Family Elder

Joined: Wed Jan 03, 2007 4:00 pm
Posts: 522
Location: Germany

Quote:

The improvement found after treating CCSVI in patients who also suffered from multiple sclerosis led Fondazione Hilarescere to establish an international cooperation with the BNAC of the Marc Jacobs Neurological Institute, New York State University and to promote the dissemination of all these discoveries in the national and international scientific community (Cenaculum Studiorum, Bologna, 8 September 2009). In line with the meaning of the word hilarescere(in Latin: make cheerful, joyful), all the experts involved in these efforts intend to bring back a smile on the face of those who suffer from diseases for which there is no clear explanation or treatment, yet.

I think the site was initiated by:
http://www.fondazionehilarescere.org/eng/

as "stated" here:
http://www.ccsvi-tracking.com/_CCSVI.php

--Frank

_________________
Treatment: CCSVI both IJV ballooned 09/2010, No DMDs, Tysabri on hold after 24 Infusions, after LDN, ABX Wheldon Regime for 1 year.

Top

CureIous

Post subject:

Posted: Mon Aug 23, 2010 10:26 am

Family Elder

Joined: Tue Jul 14, 2009 3:00 pm
Posts: 1157
Location: Riverside, CA

Thanks, I wish they would make it a little easier to find that BEFORE signing up. Some of us long time net'ers are a bit wary of insta-input.

M.

Top

Page 1 of 1

[ 4 posts ]

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Topics		Author	Replies	Views	Last post
Related topics
	CCSVI Tracking Website	keith818	2	860	Sun Nov 14, 2010 4:23 pm keith818
	New CCSVI Post-Procedure Symptom Tracking website	ThisIsMA	0	1172	Mon Nov 08, 2010 5:50 am ThisIsMA
	CCSVI "CCSVI tracking project" french language !	Fred1208	2	1117	Thu May 06, 2010 7:27 am Fred1208
	CCSVI-Tracking.Com [ Go to page: 1, 2, 3 ]	welshman	31	5814	Wed Nov 09, 2011 12:25 pm Marsei
	CCSVI Tracking	dave57	7	1404	Tue Dec 07, 2010 11:23 pm leetz

Who is online

Users browsing this forum: Robnl, tonya

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Jump to: