This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sun May 19, 2013 6:28 am

View unanswered posts | View active topics


Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]



Post new topic Reply to topic  Page 1 of 1
  [ 4 posts ] 
  Print view Previous topic | Next topic 
Author Message
Cece
 Post subject: ccsvi tracking website
PostPosted: Sun Aug 22, 2010 11:52 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8505
Anyone know anything about this site? Or want to add your data to it? I'd be interested in seeing the "aggregated graphs" once they are available.

http://www.ccsvi-tracking.com/index.php
Top
 Profile  
 
CureIous
 Post subject:
PostPosted: Mon Aug 23, 2010 12:10 am 
Offline
Family Elder
User avatar

Joined: Tue Jul 14, 2009 3:00 pm
Posts: 1155
Location: Riverside, CA
Oh great, yet another internet site by an anonymous source that wants all of our information inputted. Do we have any idea who started this site?

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
Top
 Profile  
 
Frank
 Post subject:
PostPosted: Mon Aug 23, 2010 9:47 am 
Offline
Family Elder

Joined: Wed Jan 03, 2007 4:00 pm
Posts: 521
Location: Germany
Quote:
The improvement found after treating CCSVI in patients who also suffered from multiple sclerosis led Fondazione Hilarescere to establish an international cooperation with the BNAC of the Marc Jacobs Neurological Institute, New York State University and to promote the dissemination of all these discoveries in the national and international scientific community (Cenaculum Studiorum, Bologna, 8 September 2009). In line with the meaning of the word hilarescere(in Latin: make cheerful, joyful), all the experts involved in these efforts intend to bring back a smile on the face of those who suffer from diseases for which there is no clear explanation or treatment, yet.


I think the site was initiated by:
http://www.fondazionehilarescere.org/eng/

as "stated" here:
http://www.ccsvi-tracking.com/_CCSVI.php

--Frank

_________________
Treatment: CCSVI both IJV ballooned 09/2010, No DMDs, Tysabri on hold after 24 Infusions, after LDN, ABX Wheldon Regime for 1 year.
Top
 Profile  
 
CureIous
 Post subject:
PostPosted: Mon Aug 23, 2010 10:26 am 
Offline
Family Elder
User avatar

Joined: Tue Jul 14, 2009 3:00 pm
Posts: 1155
Location: Riverside, CA
Thanks, I wish they would make it a little easier to find that BEFORE signing up. Some of us long time net'ers are a bit wary of insta-input.

M.

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  Page 1 of 1
  [ 4 posts ] 

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. CCSVI Tracking Website

keith818

2

854

Sun Nov 14, 2010 4:23 pm

keith818 View the latest post

There are no new unread posts for this topic. New CCSVI Post-Procedure Symptom Tracking website

ThisIsMA

0

1156

Mon Nov 08, 2010 5:50 am

ThisIsMA View the latest post

There are no new unread posts for this topic. CCSVI "CCSVI tracking project" french language !

Fred1208

2

1100

Thu May 06, 2010 7:27 am

Fred1208 View the latest post

There are no new unread posts for this topic. CCSVI-Tracking.Com

[ Go to pageGo to page: 1, 2, 3 ]

welshman

31

5795

Wed Nov 09, 2011 12:25 pm

Marsei View the latest post

There are no new unread posts for this topic. CCSVI Tracking

dave57

7

1394

Tue Dec 07, 2010 11:23 pm

leetz View the latest post

 


Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: