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 Post subject: ccsvi tracking website
PostPosted: Sun Aug 22, 2010 11:52 pm 
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Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8505
Anyone know anything about this site? Or want to add your data to it? I'd be interested in seeing the "aggregated graphs" once they are available.

http://www.ccsvi-tracking.com/index.php


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PostPosted: Mon Aug 23, 2010 12:10 am 
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Joined: Tue Jul 14, 2009 3:00 pm
Posts: 1155
Location: Riverside, CA
Oh great, yet another internet site by an anonymous source that wants all of our information inputted. Do we have any idea who started this site?

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap


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PostPosted: Mon Aug 23, 2010 9:47 am 
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Joined: Wed Jan 03, 2007 4:00 pm
Posts: 521
Location: Germany
Quote:
The improvement found after treating CCSVI in patients who also suffered from multiple sclerosis led Fondazione Hilarescere to establish an international cooperation with the BNAC of the Marc Jacobs Neurological Institute, New York State University and to promote the dissemination of all these discoveries in the national and international scientific community (Cenaculum Studiorum, Bologna, 8 September 2009). In line with the meaning of the word hilarescere(in Latin: make cheerful, joyful), all the experts involved in these efforts intend to bring back a smile on the face of those who suffer from diseases for which there is no clear explanation or treatment, yet.


I think the site was initiated by:
http://www.fondazionehilarescere.org/eng/

as "stated" here:
http://www.ccsvi-tracking.com/_CCSVI.php

--Frank

_________________
Treatment: CCSVI both IJV ballooned 09/2010, No DMDs, Tysabri on hold after 24 Infusions, after LDN, ABX Wheldon Regime for 1 year.


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PostPosted: Mon Aug 23, 2010 10:26 am 
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Joined: Tue Jul 14, 2009 3:00 pm
Posts: 1155
Location: Riverside, CA
Thanks, I wish they would make it a little easier to find that BEFORE signing up. Some of us long time net'ers are a bit wary of insta-input.

M.

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap


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