Saskatchewan Trials - Dr Knox

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Saskatchewan Trials - Dr Knox

Postby PCakes » Wed Aug 25, 2010 10:49 pm

SASKATOON — Saskatoon researcher Dr. Katherine Knox urged multiple sclerosis patients to have patience Wednesday, as a clinical trial of the so-called "liberation treatment" is years down the road, despite promised funding from the Saskatchewan government.

The biggest difficulty her team faces, she said, is that they don't know how to test patients to see if they have the blocked veins which, according to the theory behind liberation treatment, are linked to the disease.

"The problem is that at the present time, we do not know how to accurately and reliably define venous abnormalities that may or may not be related to MS," said Knox, who is the director of Saskatoon's MS Clinic and the Cameco MS Neuroscience Research Centre, a research unit of the University of Saskatchewan.

Her team's priority right now is to proceed with a joint study with the University of British Columbia that will look at how to best define and test for chronic cerebral spinal venous insufficiency (CCSVI)

Read more: http://www.vancouversun.com/health/Rese ... z0xgiBuIux


i knew it i knew it i knew it.. recipe for failure..take one Dr Knox mix with one ubc Dr T ..voila.. we have nothing..:( aaarrrgh

Her team's priority right now is to proceed with a joint study with the University of British Columbia that will look at how to best define and test for chronic cerebral spinal venous insufficiency (CCSVI)


..i am embarassed, as a Canadian, by their arrogance.
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Postby Billmeik » Thu Aug 26, 2010 7:13 am

as far as I know the ubc study is the only one of the six paid for by the 2.4 million that is going to use a venogram. y stenosis was only hinted at by ultrasound and mri so I back that.
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Postby Blaze » Thu Aug 26, 2010 7:32 am

That is SOOOO frustrating. Why doesn't Dr. Knox just contact Dr. McDonald in Ontario or Dr. Godley in BC if she doesn't know how to do the tests? They've been doing them for months. Dr. McDonald's technologist was the first in North America to train with Dr. Zamboni and she is now qualified to train others. Dr. Knox could also involve Dr. Haake, who is in both Ontario and Michigan.

Do we know for certain that Dr. Knox has actually been awarded the Saskatchewan research $? She and U of S seem confident they will get the grants,but I didn't think that had been decided yet.

Where are Canadian vascular surgeons and interventional radiologists in all of this?!? Except for Dr. McDonald and Dr. Godley, they are all incredibly quiet. If the VS and IR don't quickly get on board and take the driver's seat, this will be one huge train wreck!

And we thought our biggest problem was the government. Silly us!
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Postby Leonard » Thu Aug 26, 2010 7:43 am

aarrch ... send them to Zamboni!
Italy is only 10 hours and 1500 $ away.
there is no need to reinvent the wheel.
get over this not-invented-here syndrome.

they may have a few very nice days out there!
Toscany and Umbria are not far away.
and come back much wiser.
tell them, keep the sweet in front of them...
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Postby welshman » Thu Aug 26, 2010 2:57 pm

This article or interview call it what you will, is not only sad but also pathetic. How on earth can this supposed "doctor" (did she go to med school or was her certificate obtained through the North Korea College of Knowledge night education classes ?) make statements like that - she doesn't know - what has she been doing for the last 6 months while all the results have been coming out from Buffalo, Kuwait, a Symposium in New York. I am so glad she is not looking after my wife !!
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Sask gov't reseach

Postby tiredloulou » Thu Aug 26, 2010 4:16 pm

the simple answer on reference for info on this, should be made by a phone call to their newspaper

let the news relate this info........be good timing.......
anyone from Sask area .........call it in
make it simple
dr.'s names who are in Canada and have qualifiede info to share

in fact, they should receive a few phone calls,
lets grease this wheel
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Postby 1eye » Thu Aug 26, 2010 6:33 pm

And reference the documents if necessary. They want to fly before they believe in running. Gold standard will be enough for the compassionate cases. But let's face it. A screening test can be done: if done right. If you are screening out a lot of people with nothing wrong with them, you will save money on angioplasties. But if you Liberate every person with a diagnosis of 'MS', you will not have to do any Dopplers at all. Saving lots of time, equipment and money.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby VeeBee » Thu Aug 26, 2010 7:13 pm

Send Dr. Katherine Knox to the UK.

Some CCSVI activists would be crawling up her backside in a second.

We do "leadership power talks" and "closely fought conferences". We will talk the talk when she says so.

UK is the ideal place for people like Dr. Katherine Knox.

We trust our leaders. They make us leaders. We sell out quickly. Dr. Katherine Knox sells us out slowly. We work it out 10 years too late. She gets bored and goes back to canada.

We still love Dr. Katherine Knox, we want to mix with her, we want to resemble her. We would never associate with people who got in her way.

It's all set up for Dr. Katherine Knox to stroll in, give us a call, lets meet up.

Dr. Katherine Knox UK helecopter Appeal

uklovesyouknoxyccsviaction.com

Any fundraisers what to blast facebook for a few weeks, feel free. Spam tools are available online.

C'mon get those tins rattling so we can make "MS History in the UK"

We have NICE on our side.
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Postby AMcG » Thu Aug 26, 2010 11:23 pm

Seems there is a chance she won't get the job.

"I think there may be some other opportunities,” said Don McMorris. “(Knox) is doing very important work . . . but there may be room for others to step forward on the liberation piece itself.”

Read more: http://www.thestarphoenix.com/health/Ro ... z0xmimLaFk
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Postby VeeBee » Fri Aug 27, 2010 5:36 am

AMcG wrote:Seems there is a chance she won't get the job.


"(Knox) is doing very important work . . . but there may be room for others.."

Our Knoxy is a legend we need all these people who do " Very important work" - If you tell her that we also "work tirelessly" for the cause. We love buzz words, that's "The Way Forward."

We are champions of the people, we need mad knoxy to complete the set.
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Postby Blaze » Fri Aug 27, 2010 10:52 am

I'm glad to see there's room for others. I ask again, Where are the vascular surgeons? Will others besides Dr. McDonald step up and take on research--or even better--treatment?
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W

Postby thornyrose76 » Fri Aug 27, 2010 1:16 pm

Blaze wrote:That is SOOOO frustrating. Why doesn't Dr. Knox just contact Dr. McDonald in Ontario or Dr. Godley in BC if she doesn't know how to do the tests? They've been doing them for months. Dr. McDonald's technologist was the first in North America to train with Dr. Zamboni and she is now qualified to train others. Dr. Knox could also involve Dr. Haake, who is in both Ontario and Michigan.

Do we know for certain that Dr. Knox has actually been awarded the Saskatchewan research $? She and U of S seem confident they will get the grants,but I didn't think that had been decided yet.

Where are Canadian vascular surgeons and interventional radiologists in all of this?!? Except for Dr. McDonald and Dr. Godley, they are all incredibly quiet. If the VS and IR don't quickly get on board and take the driver's seat, this will be one huge train wreck!

And we thought our biggest problem was the government. Silly us!



Well said!
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Postby Jugular » Sat Aug 28, 2010 12:01 pm

This makes no sense to me. She says they don't know how to test for blockages yet she has already going ahead with a study aimed at determining whether there are blockages and if there is a genetic link.

I think she is only interested in participating in studies that have a good chance of undermining CCSVI theory rather than studies that show that treating blocked veins can benefit people suffering from MS.

Knox has pretty much been a negative ninny regarding CCSVI since the story broke. I hope someone else in Sask. is prepared to step up and take a leadership role, because she apparently isn't..
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Postby PCakes » Sat Aug 28, 2010 12:38 pm

Jugular wrote:This makes no sense to me. She says they don't know how to test for blockages yet she has already going ahead with a study aimed at determining whether there are blockages and if there is a genetic link.

I think she is only interested in participating in studies that have a good chance of undermining CCSVI theory rather than studies that show that treating blocked veins can benefit people suffering from MS.

Knox has pretty much been a negative ninny regarding CCSVI since the story broke. I hope someone else in Sask. is prepared to step up and take a leadership role, because she apparently isn't..


Her research partner, Dr Traboulsee - UBC, proclaimed on radio talk show this morning that their study will be unique in using Venography - 'The Gold Standard' as their diagnostic tool. I guess she missed the memo.

Both Dr T and Dr K emit nothing but sarcasm, condescension and skepticism towards CCSVI. I have no faith that they are capable of objective research.
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Postby Chrystal » Sat Aug 28, 2010 1:13 pm

In case you didn't read the response on MSSC Facebook to one of my questions:

A: There is continuing debate, and some confusion, as to which method is most reliable for the diagnosis of CCSVI. One goal of the studies the MS Society is funding is to examine the best method and technology to diagnose CCSVI.

My response was:

Regarding the point you made.. with all due respect, the confusing debate about the most reliable method of diagnosing CCSVI, is only taking place among the MSSC and their neurologist medical advisors. Dr. Sandy McDonald and many others are successfully testing for and diagnosing CCSVI, rather than wasting time and patients’ health in debating.

~~~~~~~~~~~~~~~~~~~

Are we MS patients the only ones who see some - if not all of these proposed studies selected by the International Review Panel (that was selected by the MSSC & NMSS) as "stalling" and a waste of more precious time and patients' health???

Imagine, "One goal of the studies that the MS Society is funding is to examine the best method and technology to diagnose CCSVI."

They are choosing to be confused...choosing to debate...choosing to remain "unaware"...choosing not to follow Dr. Zamboni's testing protocols or use the same equipment that he used to test MSers...choosing not to consult Dr. Sandy McDonald (just as they chose not to select his study for funding?) or any other vascular specialist/interventional radiologist already testing and treating CCSVI worldwide...and worst of all, they are choosing to disregard MS patients' deterioriating health while they play at "research" for years in self-imposed darkness.
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