Launch CCSVI MS clinical trials immediately, researcher urge

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Launch CCSVI MS clinical trials immediately, researcher urge

Postby MSUK » Sat Aug 28, 2010 12:11 am

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Clinical trials of the controversial liberation treatment for multiple sclerosis should happen immediately, says a former University of Saskatchewan researcher who proposed an eerily similar theory more than a decade ago.

Bernhard Juurlink published a hypothesis in 1998 that MS is related to decreased blood flow in the brain and spinal cord.

"It was very difficult to get anyone interested in this idea — the idea was easily testable by, for example, looking for blood flow in white matter in MS patients," Juurlink said in an interview this week. "I tried to first interest clinical colleagues to image brains of MS and non-MS patients, to look at blood flow, with no success."... Read More - http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2944
MS-UK - http://www.ms-uk.org/
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Postby Blaze » Sat Aug 28, 2010 4:06 am

Incredible. This researcher was at the University of Saskatchewan and tried to research blood flow in MS over 10 years ago!

Now, one U of S official says Saskatchewan is ready to go with trials while another says clinical trials are years away.

This time, though, the Premier and Minister of Health for Saskatchewan are on board and Canadians with MS know about it and are not prepared to see it fade away again.
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Postby Fernie12 » Sat Aug 28, 2010 5:29 am

Also eerie is the comments made by Dr. Knox at U of S - the same that recieved funding from the MSSC while others, who know what they are doing and could move us faster towards answer about the CCSVI riddle did not get funding (Dr. MacDonald, Dr. Haake etc.)

"The problem is that at the present time, we do not know how to accurately and reliably define venous abnormalities that may or may not be related to MS," said Knox, who is the director of Saskatoon's MS Clinic and the Cameco MS Neuroscience Research Centre, a research unit of the University of Saskatchewan. Read more: http://www.vancouversun.com/health/Rese ... z0xuHyCbXW

I mean no disrespect to Dr. Knox - heck, her proposal probably has extraordinarily little to do with MS and CCSVI - it`s an add-on to a study on twins, but the MSSC is not fulfilling what they said they would do and support the kinds of projects that would lead to the kind of answers that are required in order to help MS sufferers.
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Postby cheerleader » Sat Aug 28, 2010 6:14 am

Dr. Juurlink had read the research of Lassmann, et al regarding demyelinating lesions formed without any immune activation. As an MS researcher, he tried to find other neurologists who would study his slowed blood flow proposal. He couldn't find any. Here is the abstract to the paper he wrote in 1998, proposing slowed blood flow as a means of lesion formation:

http://www.ncbi.nlm.nih.gov/pubmed/9824835

and here's a note I posted last night on FB regarding Juurlink, hypoperfusion and white matter lesions:
link
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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby sbr487 » Sat Aug 28, 2010 10:28 am

Here is another link that seems very credible (because its from autopsy of a MS patient):
http://www.sciencedaily.com/releases/20 ... 075914.htm
A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck
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Postby Cece » Sat Aug 28, 2010 10:29 am

So many missed opportunities. I could cry to think of who might've been saved if the break-through had happened in 1998.
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Postby HappyPoet » Sat Aug 28, 2010 10:59 am

Cece,
I'm right with you... pass the box of tissues.
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Postby 1eye » Sat Aug 28, 2010 1:50 pm

Got my copy from Amazon yesterday, of Lorenzo's Oil. Shows how dumb I am. I didn't know they were behind the Myelin Project! I cried a lot. Pseudo-bulbar, I know but there were some real tears there.
"Try - Just A Little Bit Harder" - Janis Joplin
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'MS' is over - if you want it
Patients sans/without patience
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