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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Vancouver B.C. area tune in 'am650' radio right now!

Postby PCakes » Sat Aug 28, 2010 10:03 am

Dr Godley 'live' discussing CCSVI

rumour is that Dr Traboulsee will join in... 8O oop..NOT a rumour ..he's on now!

http://www.am650radio.com/ click top right corner 'listen live'
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Postby solney » Sat Aug 28, 2010 10:40 am

thanks im listening now
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Postby PCakes » Sat Aug 28, 2010 10:40 am

so far .. 'the Dr Traboulsee drug pushing show'

how can this man possibly be objective in running a CCSVI study??

quote "treatment in not available in North America" !! did the continent divide while i was sleeping?

all vapour absolutely.. no content.

Dr Godley must be chomping at his proverbial bit.

Dr T is done now.. it's Dr Godley's turn!

Dr G taking the 'high road' .. giving Dr T positive support for 'some' of his comments.
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Postby PCakes » Sat Aug 28, 2010 11:50 am

Today's 'Preposterous Penguin' awards goes to.....

Dr Anthony Traboulsee!! raahhhhhh

"we have already seen cases where stents have fallen out and into the heart"

"Dr Zamboni found ccsvi in ALL 75 participants" smirk smirk

"current drugs (drugs drugs drugs) offered are safe"

"60% diagnosed end up with severe disability but this number has declined dramatically with new drugs" (how the hell would he know that!! rrrr)

"Dr Traboulsee, why does MS relapse and remit?" "Ummm..because it does, that's why." brilliant!

apologies if i've not quoted 'word for word'..

disclaimer.. recent personal and very unpleasant interaction with Dr Traboulsee might 'scew' 'twist' 'bias' my opinion.

okay..i'm done.. and yes, i feel better. :)
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Postby 1eye » Sat Aug 28, 2010 1:31 pm

If my veins are anything to go by, remitting == corollary growth.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Re: RRMS

Postby NHE » Sun Aug 29, 2010 1:16 am

1eye wrote:If my veins are anything to go by, remitting == corollary growth.


I think you mean collateral growth, correct? Some other thoughts, I believe that at least one or two people have reported that stenoses have been found to come and go. Perhaps this could be related to relapse/remission? Or, the variable stenoses could be related to the issue of upper vs. lower jugular stenosis discussed in Dr. Sclafani's thread. Additional thoughts, perhaps the brain reaches a tipping point with reduced blood flow, increased oligodendrocyte damage, increased blood brain barrier permeability and immune cell entry, that it's like the proverbial last straw and the brain can no longer compensate?

NHE
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Postby Blaze » Sun Aug 29, 2010 6:02 am

What did Dr. Godley have to say on the show? Is False Creek any closer to being able to offer treatment in Vancouver? What were his views on the problems getting treatment in Canada?
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Postby PCakes » Sun Aug 29, 2010 6:17 am

mornin'

Questions posed re access to treatment in Canada were more general and did not seperate the public and private systems. There was some talk of Health Canada being slow to approve the necessary diagnostic equipment?? and lots of talk of the need for more research but no real answer.

Dr Godley was great, took the high road. He really has to be careful given his precarious 'place' in our public system.


d
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Postby jimmylegs » Sun Aug 29, 2010 4:13 pm

i just want to say that i love tipping points NHE. nice comment.
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