I`m Sorry

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

I`m Sorry

Postby jerkbutt » Wed Sep 01, 2010 6:39 pm

I`m sorry for my Rant on Hollys Medicine,Im just trying to be honest.They are having a MS walk I believe Oct 2 here in Prescott AZ .I might be in it, pushing a empty wheelchair.Im sure Ill get many Questions why Im I pushing a empty wheel chair.Ijust heard the author of Harry Potter books mother died of MS.Take Care Everyone. Im not a asshole Im jerkbutt,which Holly gave me that name.xxoos[/b]
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Postby HappyPoet » Wed Sep 01, 2010 7:01 pm

Don't worry about anything. You're allowed to work through your emotions, including anger, and if we can help, you know where we are. We'd love it if you kept in touch.

Your idea to push the empty wheelchair is terrific. I can imagine Holly looking down from above watching -- you're sure to get lots of attention.

Take care,
~HP
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Postby Cece » Wed Sep 01, 2010 7:55 pm

I like it when you show up, I think we do need to remember Holly here and also remember that this is not without risk.
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Postby 1eye » Wed Sep 01, 2010 10:42 pm

Cece wrote:I like it when you show up, I think we do need to remember Holly here and also remember that this is not without risk.


It is just unfortunate that we are not being allowed to accurately assess that risk. which gets smaller every single Liberation and has so little to do with the procedure itself.

In Canada we erected statues to a hero who died trying to fight cancer. But we should also remember heroes like Holly who died trying to give us all hope. I think she succeeded, and though I was not even aware of her while she lived, she will live on for me and thousands more.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby Blaze » Thu Sep 02, 2010 5:52 am

If you can't rant among friends, where can you rant? Holly must have known you well to give your that nickname.

What a wonderful (but sad!) tribute to her to push her empty wheelchair. Our thoughts will be with you.

I joined this forum only after Holly's death, but her spirit still lives here.
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Postby vivavie » Thu Sep 02, 2010 8:06 am

Don't worry about it. This site is for the good and the bad. It keeps it balance and helps us take make better decision.
How lucky she was to have been so much loved, that is a great gift you have given her. It is always more difficult for the ones who are left behind.
I am sure she was at peace with her decision and potential implications as we all are when we make the choice to do this so early in this still "unproven" technic.
I once read a sentence that help me during bad time (had cancer before ms):
Hold on
Just hold on for the next 5 min, then hold on again the next one, ect
Just hold on!!!
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Postby PCakes » Thu Sep 02, 2010 8:14 am

vivavie wrote:How lucky she was to have been so much loved, that is a great gift you have given her.


You know not I, nor I you.. but this, we know, to be true..
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jerk

Postby blossom » Thu Sep 02, 2010 4:49 pm

hi jerkbutt, i'm glad to hear you saying you are trying so hard to get a grip on all this. whether you have ms yourself or you happen to love someone that has ms this damn disease can play mind games and is so cruel robbing us of so much. i can understand you wanting answers- i can understand totally if you just have to take a real hissy fit sometimes. i have had every emotion under the sun through the yrs. and anyone that has ms or is a caregiver that has it all under control-God bless them- i'd like to know this magic formula. i really give you credit that you are gonna march for ms. i admire you very much that you loved your holly so much and was there for her. so, now you gotta start trying to heal and walking for ms is a good first step. sounds like your holly knew you well to give you the name jerkbutt-so live up to it -go "jerk" the "butt" of things that stand in the way of the little bit of happiness one might find in this life. take care "jerkbutt".
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Postby newlywed4ever » Thu Sep 02, 2010 7:32 pm

jerkbutt, thank you for sharing. You have hit an inner chord of each & every one of us. And then I came upon 'pushing an empty wheelchair'...can't you just imagine Holly smiling at that? Whether you do it or not, she's smiling at the mere thought. (as am I)
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Postby Drury » Fri Sep 03, 2010 12:05 pm

Jerkbutt,

'Pushing an empty wheelchair for Holly' is one of the single most moving things I have ever heard.

What a gift you were to each other.......

Drury
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Postby notadoc » Sun Sep 12, 2010 8:30 am

Pushing an empty wheelchair for Holly is a wonderful idea, which gave me another idea.

Now I wonder if people could push empty wheelchairs of those no longer needed by people who have been liberated; Liberated both from CCSVI and liberated from the wheelchair. This could be a great way to spread the word to those many thousands of sufferers and caregivers who are still unaware of CCSVI, or who have only heard the "dangerous hoax" stories.

"Now available. Previous occupant has been liberated from CCSVI and is walking!"

Notadac
Scheduled at VIP in Phoenix Oct 4
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ccsvi

Postby blossom » Sun Sep 12, 2010 2:35 pm

what a group of creative and careing people!!
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