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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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PCakes
PostPosted: Thu Sep 02, 2010 9:33 am 
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A very positive and potentially motivating idea..

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Mark Lane is requesting that all those Canadians who have had angio/venoplasty as treatment for CCSVI or MS to send a 1 page testimony of your experiences pre and post op to mark@marklane.ca. Please include your name and contact information. This anecdotal evidence will be presented first hand to the provinicial Health Ministers on the 12 Sept in NL.
23 minutes ago · Comment · Like · View Feedback (3)Hide Feedback (3) · Flag
Joan Beal and Sally Winship like this..
CCSVI in Multiple: Sclerosis great idea and initiative, Mark--
11 minutes ago ·


Last edited by PCakes on Fri Sep 10, 2010 2:46 pm, edited 5 times in total.

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PCakes
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PostPosted: Sat Sep 04, 2010 7:39 am 
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*bump*
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garyak
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PostPosted: Sat Sep 04, 2010 11:24 am 
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This is a fantastic idea - too bad I'm not done until sept 20th.
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nicknewf
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PostPosted: Sat Sep 04, 2010 11:44 am 
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The more information the better - PCakes, maybe you should retitle this post as "Canadians - Give Mark Lane your treatment results by 10Sept2010
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garyak
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PostPosted: Sat Sep 04, 2010 12:30 pm 
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Consider using "urgent" in the title? This is an important post. Dr. Kirsty Duncan is also calling for Canadians who have had the procedure to collaborate and document , as a group, our post procedure results;

http://www.insidetoronto.com/community/ ... als-for-ms
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garyak
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PostPosted: Sat Sep 04, 2010 7:55 pm 
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Cece
 Post subject: fantastic idea
PostPosted: Sat Sep 04, 2010 8:33 pm 
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Wow, I like this idea. I might steal it for us Americans too. Thinking....
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1eye
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PostPosted: Sun Sep 05, 2010 4:44 pm 
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The Canadians will do their usual Catbert-ian thing, and fiddle with their 'MS' observations for many years after the rest of the world has settled the issues very convincingly. Life for the former 'MS' patient will be made as miserable as possible. Getting Liberated will continue, at least in Canada, to be as difficult as ten years' worth on back-tax returns, followed by acquiring Canadian citizenship, refugee status, aboriginal status, and a license to practice medicine if you got your degree in Elbonia.

It's the way we do things, because

We...

are...

Canadians.

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
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PCakes
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PostPosted: Mon Sep 06, 2010 12:21 pm 
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Sorry everyone..I am away with limited access.. 'subject' revised as requested.. pc
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annad
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PostPosted: Mon Sep 06, 2010 5:15 pm 
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PCakes,
I just reposted Mark's request. I was asked to post it. . . I guess he didn't know it was on and I didn't look down far enough to see this.
Oh well, good reminder.
a
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PCakes
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PostPosted: Tue Sep 07, 2010 9:26 pm 
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no worries Annad.. :) ..this is a 'mo betta' occasion..

75 letters so far!! amazing.. !!
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PCakes
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PostPosted: Thu Sep 09, 2010 6:41 am 
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*bump*
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cheerleader
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PostPosted: Thu Sep 09, 2010 4:35 pm 
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Mark has 150 testimonies to present to the health ministry on Sept. 13. C'mon Canada...send this man your stories. He's the real deal

link to Mark's story

cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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PCakes
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PostPosted: Fri Sep 10, 2010 2:48 pm 
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*bump*...Last day to get your letters in!!
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sbr487
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PostPosted: Sat Sep 11, 2010 12:35 am 
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Guys, I think surgical canada is a good source to reach people who had the procedure. I am sure not all of them are internet savvy. So, try contacting them to reach out to people ...

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A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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