Hubbard Foundation CCSVI Multi-Center Registry is approved

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby nellie » Fri Sep 24, 2010 6:26 pm

This is the best news possible. So excited to see these IR's wanting to get involved. Such good news for us all to be able to be treated close to home. Thank you Hubbard's!
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Postby bigfoot14 » Mon Sep 27, 2010 11:57 am

bump

So has anyone heard if/when some of these sites will be approved?
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Postby Cece » Mon Sep 27, 2010 12:07 pm

A handful of them will be up and running within a couple weeks, according to Dr. Hubbard as reported by garyak. :)
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Postby cheerleader » Mon Sep 27, 2010 12:08 pm

bigfoot14 wrote:bump

So has anyone heard if/when some of these sites will be approved?


The map was updated a couple of days ago....lots more sites have applied- about 75 total. Only one approved so far is the Hubbard site---but keep checking the map. When a site is approved, the flag turns red.

link to CCSVI Registry map

cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Cece » Mon Sep 27, 2010 12:50 pm

http://www.hubbardfoundation.org/CCSVI_ ... tions.html

"If you would like to see how one of these sites are coming along, we can provide you with the name of the doctor nearest you that has already expressed an interest, and you can call them directly."

For fellow Minnesotans, there are now 2 Minneapolis sites as well as the 1 St. Paul site on the map!
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Postby bigfoot14 » Mon Sep 27, 2010 1:26 pm

@ cheer

Actually there are 84 sites listed (yeah, I counted them all) and have been for about a week....

I was just wondering when more of those dots would turn red...
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Postby nellie » Mon Sep 27, 2010 6:18 pm

Cece can you pm me with names in Mn? Thanks.
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Postby Cece » Mon Sep 27, 2010 6:41 pm

Nellie, I don't know anything yet. The quote I posted is from Dr. Hubbard's website. If you follow the link, you'll find what I quoted there and their email under 'Contact us' if you want to see if they'll share any names....
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Postby nellie » Mon Sep 27, 2010 6:46 pm

Thanks Cece.
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Postby Donnchadh » Tue Sep 28, 2010 4:24 am

cheerleader wrote:
bigfoot14 wrote:bump

So has anyone heard if/when some of these sites will be approved?


The map was updated a couple of days ago....lots more sites have applied- about 75 total. Only one approved so far is the Hubbard site---but keep checking the map. When a site is approved, the flag turns red.

link to CCSVI Registry map

cheer


Way too big a file to download with a dial-up internet connection.

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Postby Cece » Tue Sep 28, 2010 10:34 am

Here are all the cities:

Minneapolis, MN

Chicago, IL

Indiana

Philadelphia, PA

Tampa, FL

Seattle, WA

New Jersey
Lone Tree, CO

Clearwater, FL

Manhattan
New York, NY
New York, NY

Louisville, KY

Kankakee, IL

Christiana
Upper Christiana, DE
Upper Christiana, DE

Omaha, NE

Newark, DE

Framingham, MA

Aurora, CO

Burlington, WI 53105

Towson, MD

Oak Brook, IL

Colorado Springs, CO

Denver, CO

Naples, FL

Daytona Beach, FL

Panama City, FL

Powell, OH

Salt Lake City, UT

Humble, TX

Baltimore, MD

New Orleans, LA

Thomasville, GA

San Antonio, TX

Fresno, CA

Lake Forest, IL

New Orleans, LA

West Palm Beach, FL

Vancouver, BC
Canada
Canada

Orange, CA

Farmington, CT
Royal Oak, MI
Cary, NC
Cedar Rapids, IA


Eau Claire, WI


Warren, MI


Chicago, IL


Crestview Hills, KY


Bronx, NY


Plattsburgh, NY


Dayton, OH


NY, NY


Poughkeepsie, NY


St. Paul, MN


Rochester, NY


New Hyde Park, NY


Applied Functional Mri Institute
Applied Functional Mri Institute
10065 Old Grove Rd # 103
San Diego, CA 92131-1664
(858) 444-3595
appliedfmri.org



San Diego, CA

Washington, DC

Ann Arbor, MI

Minneapolis, MN

Bronx, NY

South Bend, IN

Akron, OH

Providence, RI

Grand Rapids, MI

Evansville, IN

Boise, ID

Austin, TX

Poughkeepsie, NY

Billings, Mt

Dallas, TX

Dallas, TX

Hinsdale, IL

Pueblo, CO

Denver, CO

Omaha, NE

Nampa, ID

Fort Wayne, IN

Ogden, UT

Novi, MI

Duluth, GA

Washington, DC

Marietta, GA

Hyde Park, NY 12538

New Hyde Park, NY
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Postby bigfoot14 » Sun Oct 03, 2010 8:07 am

I looked at the Hubbard website this morning & 3 of the sites have turned from blue to yellow.....anybody know what that means?

I thought that they were going to change from blue to red, with red meaning good to go........
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Postby Cece » Sun Oct 03, 2010 9:43 am

Bigfoot, you're right, that is curious! I think it's a good sign....

For MN, a third Minneapolis site has been added, so with St. Paul that makes four.
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Hubbard yellow dots

Postby MS_HOPE » Wed Oct 06, 2010 7:04 am

A guess only, about the yellow dots. Probably close to approval - perhaps even have already met the Hubbard requirements, but need to put some things (policies, procedures, staff, website, etc.!) in place before announcing. (Imagine the deluge of inquiries they have to be prepared for once they go public!)
CCSVI:  Making Sense of MS
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Postby garyak » Wed Oct 06, 2010 9:40 am

I asked Devin Hubbard this question this morning . Here is his response;

Hi Gary,


Blue means, they've signed our NDA. Yellow means they are close to being able to treat. Red means they're up and running.


Hope you're feeling better every day



Devin Hubbard
Applied fMRI Institute
10065 Old Grove Road
Ste 103
San Diego, CA 92131
858-444-3595
fax 858-444-3599
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