Hubbard Foundation CCSVI Multi-Center Registry is approved : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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Hubbard Foundation CCSVI Multi-Center Registry is approved

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nellie

Post subject:

Posted: Fri Sep 24, 2010 7:26 pm

Family Member

Joined: Wed Jul 21, 2010 3:00 pm
Posts: 94

This is the best news possible. So excited to see these IR's wanting to get involved. Such good news for us all to be able to be treated close to home. Thank you Hubbard's!

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bigfoot14

Post subject:

Posted: Mon Sep 27, 2010 12:57 pm

Family Elder

Joined: Mon Nov 30, 2009 4:00 pm
Posts: 110
Location: State of confusion (Illinois)

bump

So has anyone heard if/when some of these sites will be approved?

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Cece

Post subject:

Posted: Mon Sep 27, 2010 1:07 pm

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Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8506

A handful of them will be up and running within a couple weeks, according to Dr. Hubbard as reported by garyak.

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cheerleader

Post subject:

Posted: Mon Sep 27, 2010 1:08 pm

Family Elder

Joined: Mon Sep 10, 2007 3:00 pm
Posts: 4676
Location: southern California

bigfoot14 wrote:

bump

So has anyone heard if/when some of these sites will be approved?

The map was updated a couple of days ago....lots more sites have applied- about 75 total. Only one approved so far is the Hubbard site---but keep checking the map. When a site is approved, the flag turns red.

link to CCSVI Registry map

cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

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Cece

Post subject:

Posted: Mon Sep 27, 2010 1:50 pm

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Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8506

http://www.hubbardfoundation.org/CCSVI_ ... tions.html

"If you would like to see how one of these sites are coming along, we can provide you with the name of the doctor nearest you that has already expressed an interest, and you can call them directly."

For fellow Minnesotans, there are now 2 Minneapolis sites as well as the 1 St. Paul site on the map!

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bigfoot14

Post subject:

Posted: Mon Sep 27, 2010 2:26 pm

Family Elder

Joined: Mon Nov 30, 2009 4:00 pm
Posts: 110
Location: State of confusion (Illinois)

@ cheer

Actually there are 84 sites listed (yeah, I counted them all) and have been for about a week....

I was just wondering when more of those dots would turn red...

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nellie

Post subject:

Posted: Mon Sep 27, 2010 7:18 pm

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Joined: Wed Jul 21, 2010 3:00 pm
Posts: 94

Cece can you pm me with names in Mn? Thanks.

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Cece

Post subject:

Posted: Mon Sep 27, 2010 7:41 pm

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8506

Nellie, I don't know anything yet. The quote I posted is from Dr. Hubbard's website. If you follow the link, you'll find what I quoted there and their email under 'Contact us' if you want to see if they'll share any names....

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nellie

Post subject:

Posted: Mon Sep 27, 2010 7:46 pm

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Joined: Wed Jul 21, 2010 3:00 pm
Posts: 94

Thanks Cece.

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Donnchadh

Post subject:

Posted: Tue Sep 28, 2010 5:24 am

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Joined: Sat Jan 23, 2010 4:00 pm
Posts: 465

cheerleader wrote:

bigfoot14 wrote:

bump

So has anyone heard if/when some of these sites will be approved?

Way too big a file to download with a dial-up internet connection.

Donnchadh

_________________
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!

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Cece

Post subject:

Posted: Tue Sep 28, 2010 11:34 am

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8506

Here are all the cities:

Quote:

Minneapolis, MN

Chicago, IL

Indiana

Philadelphia, PA

Tampa, FL

Seattle, WA

New Jersey
Lone Tree, CO

Clearwater, FL

Manhattan
New York, NY
New York, NY

Louisville, KY

Kankakee, IL

Christiana
Upper Christiana, DE
Upper Christiana, DE

Omaha, NE

Newark, DE

Framingham, MA

Aurora, CO

Burlington, WI 53105

Towson, MD

Oak Brook, IL

Colorado Springs, CO

Denver, CO

Naples, FL

Daytona Beach, FL

Panama City, FL

Powell, OH

Salt Lake City, UT

Humble, TX

Baltimore, MD

New Orleans, LA

Thomasville, GA

San Antonio, TX

Fresno, CA

Lake Forest, IL

New Orleans, LA

West Palm Beach, FL

Vancouver, BC
Canada
Canada

Orange, CA

Farmington, CT
Royal Oak, MI
Cary, NC
Cedar Rapids, IA

Eau Claire, WI

Warren, MI

Chicago, IL

Crestview Hills, KY

Bronx, NY

Plattsburgh, NY

Dayton, OH

NY, NY

Poughkeepsie, NY

St. Paul, MN

Rochester, NY

New Hyde Park, NY

Applied Functional Mri Institute
Applied Functional Mri Institute
10065 Old Grove Rd # 103
San Diego, CA 92131-1664
(858) 444-3595
appliedfmri.org

San Diego, CA

Washington, DC

Ann Arbor, MI

Minneapolis, MN

Bronx, NY

South Bend, IN

Akron, OH

Providence, RI

Grand Rapids, MI

Evansville, IN

Boise, ID

Austin, TX

Poughkeepsie, NY

Billings, Mt

Dallas, TX

Dallas, TX

Hinsdale, IL

Pueblo, CO

Denver, CO

Omaha, NE

Nampa, ID

Fort Wayne, IN

Ogden, UT

Novi, MI

Duluth, GA

Washington, DC

Marietta, GA

Hyde Park, NY 12538

New Hyde Park, NY

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bigfoot14

Post subject:

Posted: Sun Oct 03, 2010 9:07 am

Family Elder

Joined: Mon Nov 30, 2009 4:00 pm
Posts: 110
Location: State of confusion (Illinois)

I looked at the Hubbard website this morning & 3 of the sites have turned from blue to yellow.....anybody know what that means?

I thought that they were going to change from blue to red, with red meaning good to go........

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Cece

Post subject:

Posted: Sun Oct 03, 2010 10:43 am

Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8506

Bigfoot, you're right, that is curious! I think it's a good sign....

For MN, a third Minneapolis site has been added, so with St. Paul that makes four.

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MS_HOPE

Post subject: Hubbard yellow dots

Posted: Wed Oct 06, 2010 8:04 am

Family Elder

Joined: Fri Jun 11, 2010 3:00 pm
Posts: 132
Location: North Carolina, USA

A guess only, about the yellow dots. Probably close to approval - perhaps even have already met the Hubbard requirements, but need to put some things (policies, procedures, staff, website, etc.!) in place before announcing. (Imagine the deluge of inquiries they have to be prepared for once they go public!)

_________________
CCSVI: Making Sense of MS

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garyak

Post subject:

Posted: Wed Oct 06, 2010 10:40 am

Family Elder

Joined: Sun May 30, 2010 3:00 pm
Posts: 314
Location: grande prairie , alberta,canada

I asked Devin Hubbard this question this morning . Here is his response;

Hi Gary,

Blue means, they've signed our NDA. Yellow means they are close to being able to treat. Red means they're up and running.

Hope you're feeling better every day

Devin Hubbard
Applied fMRI Institute
10065 Old Grove Road
Ste 103
San Diego, CA 92131
858-444-3595
fax 858-444-3599

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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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