Hi to all new and old forum members--
I just wanted to say that I hope you understand that I can't make specific advice to people regarding medical care. I get lots of pms every day asking for my thoughts about CCSVI docs and treatment. I really am not qualified to make suggestions about individual's care....and when I do, what I say is do the research, talk to the doctors yourself, consult family members and pray on it. That's what we did for Jeff. Please don't be offended if I don't write back.
I wish it was more clear at this point, but it's not. Angioplasty has been wonderful for many, nothing to some, and terrible for others. Read all of the threads here, especially the negative results ones...
We are in the beginning stages. It's only been over a year since Jeff was treated. Yes, he's doing really well, but he was RRMS, diagnosed three years ago, his highest measure was 1.5 on the EDSS. And he's never been physically disabled. He had terrible fatigue, heat intolerance and cognitive issues which resolved. He remains on a bi-weekly dosage of copaxone, is on the Endothelial Health program and exercises an hour every day.
I keep writing about CCSVI and am working to advance research with CCSVI Alliance because I believe venous malformations are correlated to MS, and this needs to be studied....but I am by NO MEANS a medical professional. Hope that clears it up...
Come to www.ccsvi.org
for the best, well-organized info. Look into clinical trials, stay close to home for follow-up and keep reading and learning.