Attn: Canadians who have been treated

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Attn: Canadians who have been treated

Postby annad » Mon Sep 06, 2010 5:10 pm

I am posting for Mark Lane:

Mark Lane is requesting that all those Canadians who have had angio/venoplasty as treatment for CCSVI or MS to send a 1 page testimony of your experiences pre and post op to mark@marklane.ca. Please include your name and contact information. This anecdotal evidence ...will be presented first hand to the Health Ministers at their upcoming meetings on the 13 Sept in Newfoundland and Labrador. I currently have 80+ personal testimonials and we can do better! C'mon Canada!
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Postby garyak » Mon Sep 06, 2010 8:23 pm

pcakes was also passing this message on. Time is running out to get as many of these as possible. Thanks for re-posting annad and to you pcakes cause this is an important excercise.
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Postby annad » Tue Sep 07, 2010 5:17 am

garyak,
I only realized it was posted after the fact :/ It's ok, it's a reminder. I think Mike had some 75 sent to him and we know there are more than 75 of us who have been treated in Canada.
take care
a
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Postby garyak » Tue Sep 07, 2010 10:11 am

How is Mark going to present these testimonials, in peron or via a third party ? Also is there a risk that this attempt will be in vain where these submissions won't be accepted?
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Postby nicknewf » Tue Sep 07, 2010 3:41 pm

There was a news piece here in NL that he has already meet with the NL Minister of Health (Jerome Kennedy). Presumably he is going to present him with the materials.
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Postby annad » Tue Sep 07, 2010 5:29 pm

garyak,
I don't know how Mark is submitting these. The message that's being passed around does say 'first hand' so I can only assume directly from him.

We won't know if they're accepted or not or even if they are read once they are accepted but we won't know unless we try. It would be hard to turn down a stack of evidence in front of others though. :)
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Postby garyak » Thu Sep 09, 2010 4:15 pm

I agree 100% with this initiative and hope is has the desired affect.
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Postby annad » Thu Sep 09, 2010 4:18 pm

Just saw this updated reminder on facebook.
THREE days left and he now has 150 reports. . . . More please!

Mark Lane is reminding everyone that we ONLY HAVE 2 DAYS LEFT for all those Canadians who have had angio/venoplasty as treatment for CCSVI or MS to send a 1-2 page testimony of your experiences pre and post op to mark@marklane.ca. Please include your name and province at a minimum. This anecdotal evidence will be presented first hand to the Health Ministers at their up...coming meetings on the 13 Sept in Newfoundland and Labrador. I currently have 150+ personal testimonials. We can do better! C'mon Canada! We do not want to miss this unique opportunity! We can all make a difference!
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