Treated for CCSVI almost a YEAR ago! Here's where I stand...

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: Thanks

Postby magoo » Sat Sep 11, 2010 9:37 am

Gordon wrote:Magoo, I know you not but have followed your efforts. From one of your greatest presidents I repeat the following


Far better is it to dare mighty things, to win glorious triumphs, even though checkered by failure... than to rank with those poor spirits who neither enjoy nor suffer much, because they live in a gray twilight that knows not victory nor defeat.

Theodore Roosevelt

God bless and my prayers have been sent to my Lord

treated one 3 weeks ago, comign along nicely.

Gordon

Thanks Gordon, I love it!
hannakat, here's to the day your veins are opened!! Best of luck!
Vhoenecke, this new hope for us is amazing! If there is any narrowing, new or old, I will have it fixed! Knowing what a difference it makes, makes that decision easy for me.
garyak, thanks for the biggest compliment...a clear mind!
Lora, I'm excited to meet with Dake next month. I can't wait to show him what a difference he has made in my life.
elyse, thanks and I plan on making year two awesome!!!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby ppicklee » Sat Sep 11, 2010 2:08 pm

Thanks so much for posting. I look forward to your next post letting us know. Thanks again! I am so glad you stuck around. :-)
p
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Postby walcat » Sat Sep 11, 2010 8:05 pm

Rhonda,
Happy Anniversary! Thank you for sharing, I've been following all you pioneers since November, and it's thanks to all of you that I've been pushing for this. I finally have my day coming. I hope your numbness clears!
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Postby catfreak » Sat Sep 11, 2010 9:24 pm

Hi Rhonda!!! :D :D :D

Can you believe it's been a year!! My 1 year was Sept 2nd!!

I am doing really good. Like you said doing things this year I could never have done a year ago. I had some numbness on my arms creep up on me last week that had been gone. When I get a headache it scares me but then I remember these are tylenol headaches not migraines.

Our first grandbaby is due within the next 10 days. A little boy who will be named Nolan Adam Smith. One year ago I could not even get excited about something like that since I had no energy for it. Now I am so ready so get my hands on this baby!!!

When are you going back to Stanford? Do you have an appointment yet? PM me if you want to.

Good to hear from you!!

Cat (Cindi)
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby magoo » Sun Sep 12, 2010 6:02 am

ppicklee and walcat, thanks for the replies! Walcat, best of luck to you with your upcoming treatment!!
Cindi!!! Hello!!!! I was thinking of you. I am so glad you are doing well. Happy one year anniversary! Isn't it wonderful? I am scheduled to see Dr. Dake October 25th. I completely agree with the tylenol vs migraine headaches and how nervous they can make you. Congrats on the pending arrival of your first grandbaby. What an exciting time. I am so happy for you. Looking forward to these milestones without the fear is a true blessing. Be well!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby amadeus » Sun Sep 12, 2010 11:15 am

Magoo wrote: Blossom e OZ , Grazie, e le mie speranze sono alte per una migliore qualità della vita per tutti MSers !
OZ , suona come avete molto da festeggiare dopo 3 settimane. Spero di continuare a vedere risultati positivi !


Ciao Rhonda, I'm Diego, an Italian boy, I write from Milan, I apologize for my English quite low, Use google to translate, I read your story and I must say that it is very beautiful in Italy everything is blocked because of the trial, funny that I live in the country Zamboni, but if you want me to work I go to Poland or Bulgaria to spend a lot of money.
I made the ECD in August and was positive, hopefully soon here in Italy decide to proceed with the operation of MS patients who so richista. read stories like yours and hope and courage from what we have sick need.
Hail, sorry still little English, but surely you will forgive me. A kiss and good luck.

DIEGO
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Postby magoo » Mon Sep 13, 2010 5:29 am

Diego, your english is just fine :D
I hope you will be able to have your treatment soon. It is very sad that it is not available to you right now.
Thank you for your kind words. They mean a lot.
A kiss and good luck to you too!!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby costumenastional » Mon Sep 13, 2010 6:27 am

You rock.
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Postby magoo » Tue Sep 14, 2010 6:00 am

Thank you.
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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