What My Neurologist Says About CCSVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

What My Neurologist Says About CCSVI

Postby ConstableComfortable » Sun Sep 12, 2010 11:17 am

I snuck in a recorder to my latest appointment with my Neuro. I asked what he thought about ccsvi and here's the transcript...

http://constablecomfortable.blogspot.com/
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Postby Cece » Sun Sep 12, 2010 11:25 am

Thanks for sharing. Maybe we need more of these! I think the neurologists are having these conversations again and again and their objective is to get off the subject as quickly as possible.
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Postby Blaze » Sun Sep 12, 2010 11:52 am

It's like many of the neurologists are reading from a prepared script with some minor variations.
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Postby L » Sun Sep 12, 2010 11:59 am

I like the Derren Browne reference. Very good..

Yes, sack him!

Are you in London, by the way?
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Postby blossom » Sun Sep 12, 2010 12:15 pm

pretty slick takeing a tape recorder. i like that. i'll give the guy credit that he even talked about it even though it's like blowing smoke. at least he said keep an eye on it. there has to be a connection or people wouldn't get better or worse. i hope while they are keeping an eye on it they start to connect the dots.
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Postby Motiak » Sun Sep 12, 2010 12:19 pm

Is it legal to record someone without their consent? Just saying, seems kind of dicey.
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Postby Ruthless67 » Sun Sep 12, 2010 12:41 pm

ConstableComfortable,

A week ago I wrote about this very thing happening,

Most Neurologist Plan to Prescribe Oral MS Drug
http://www.thisisms.com/ftopicp-132375-.html#132375

“almost 60% of neurologists expressed unaided concern about the side effects/safety of oral MS therapies.

Despite their concerns, the vast majority of neurologists expect to prescribe these drugs

expected to be highly efficacious and more convenient for patients than available inject able therapies.”


I think your Neurologist falls into this category, don’t you? I mean, just because it’s more “efficacious and more convenient” to swallow a pill than inject a needle into ourselves, we’re going to be “nudged” toward the easy way. “Just pop a pill.” Regardless of the side effects??????


NEURO: I’m OK about this, what I would say is that there are going to be tablets available in about a years time. The drug will be Fingolimod. Both it and Cladribine cause more infections than normal, they suppress the immune system and so they may not be as safe that way, than the injections. If you’re not tolerating the injections then it’s another choice for you.

No, no, what I mean is, we’ve got these pills arriving, they’re pretty good, but they may give you different side effects, you know? But we’ll use them if we need to.


Thank you for taping the conversation and sharing it with the rest of us. From previous conversation with my PRIOR neurologist, I'm sure if I chose to see him again, we'd have the same dialoge as you and your neurologist.

Lora
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Postby ConstableComfortable » Sun Sep 12, 2010 12:44 pm

L wrote:I like the Derren Browne reference. Very good..

Yes, sack him!

Are you in London, by the way?



Yes I'm in London. You?
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Postby joge » Sun Sep 12, 2010 12:44 pm

Blaze wrote:It's like many of the neurologists are reading from a prepared script with some minor variations.


My dutch neurologist is using this same script, for sure!
I'm ready, I'm ready !
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Postby ConstableComfortable » Sun Sep 12, 2010 12:48 pm

Motiak wrote:Is it legal to record someone without their consent? Just saying, seems kind of dicey.


I guess it would be if it was for a national newspaper or something similar. Also there are no names named so no libel I'm guessing??
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Postby 1eye » Sun Sep 12, 2010 12:50 pm

As long as the person is not identified, it can hardly be slander. Perfectly legal. In fact I'd like to see more of these. Not that this guy sounds like *my* neurologist. He does. But then as someone said, they all sound alike. Besides I've fired mine.

And if you think they're not taping you: I know the dicta-phone installation guy. I had one neurologist who used to go over a transcript from last time for the first half of every appointment. It got to be harder and harder to get an appointment because of waiting for the transcription to be done. I would say this guy was in danger of fundamental disappearance.*

* Like my boss used to say "in danger of disappearing up his own fundament". Or in other words, performing an anatomical impossibility upon himself...
Last edited by 1eye on Sun Sep 12, 2010 1:10 pm, edited 1 time in total.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby PCakes » Sun Sep 12, 2010 12:58 pm

Good day Constable!
I read this over on facebook and pardon the intrusion, I looked into your profile as I would have sworn we shared the same doctor. Are there memo's circulating?
To share one of my own personal favorites.. in response to the question "Dr...what is your opinion of ccsvi?" he replied.."what do you do for a living?".. puzzled, I answered.. to which he responded .."and how would you like it if someone told you how to do your job?"
I am in western Canada..
I was thinking this morning, which I do way too much, that in Canada we have essentially created a medical monster. Patients are 'numbers' within quotas. In countries with 'pay as you go' health services you are the 'customer' and as such, as in any other sales/purchase transaction, are in a position to expect satisfactory service or go elsewhere. Although the burden of payment is undesireable the power as a consumer is the opposite. I would imagine, and could be mistaken as oft I am, that this would allow healthy and respectful dialogue with your potential provider. Access to a second opinion could be just that. Here in Canada we are herded through the system. 'Get 'em in..get 'em out'.
Sound second opinions are rare as records follow the patient and doctors are reticent to discredit a colleague. Dialogue and discussion, particularly with specialists when this is most important, regarding method of diagnosis and course of treatment is barely tolerated. Provincial Health boards set the rules and the doctors must follow or else. For us, the patients, it's take it or leave it or...go somewhere else.
Canada is wrought with the practice of 'symptomatic medicine' This to the detriment of an insufficient pool of resources.
I will end this rant with.. there are many good and caring doctors in our system and we are lucky that they choose to stay. It is the 'system' I attack. My/our frustrations must be magnified thousandfold by those shackled and longing to help.
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Postby L » Sun Sep 12, 2010 1:18 pm

ConstableComfortable wrote:
L wrote:I like the Derren Browne reference. Very good..

Yes, sack him!

Are you in London, by the way?



Yes I'm in London. You?


I am, yes. I'll send you a PM just to see if we share a neurologist..
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Postby L » Sun Sep 12, 2010 1:20 pm

ConstableComfortable wrote:
Motiak wrote:Is it legal to record someone without their consent? Just saying, seems kind of dicey.


I guess it would be if it was for a national newspaper or something similar. Also there are no names named so no libel I'm guessing??


If it did come down to it, which it won't (no names as you say) you could always say that you have to record stuff on account of cognitive troubles, trouble remembering events, what was said and so on..
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Postby Blaze » Sun Sep 12, 2010 1:44 pm

Motiak wrote:Is it legal to record someone without their consent? Just saying, seems kind of dicey.


The law varies depending on where you are. In Canada, it is legal to tape as long as one party to the coversation knows it is being taped. Laws in US vary from state to state. I don't know what the law is in Britain, where I think ConstableComfortable may be based.

Even though I may legally be able to tape someone without their knowledge, I usually ask permission before I do.
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