I think there is a connection here for me as well with a history of neck injuries. I wrote on George Jelinek FB site to get his opinion and I also put a link on Ashton Embry's FB site, and a mention on DrS's page here on TiMS. I personally think there is more to be learned here and hope that the people I have linked will look into the possiblity of a CCSVI connection. The restriction to the thecal sack must have an influence on blood flow through the cord area.
GayleandNigel Wadham Hi George I have been looking at the comments made by Dr Flanagan about the injuries of a person on the bottom of this link. Costume national has similar problems MS to the problems I have as a dx of PPMS.
To continue,I have problems at C2 and disc degeneration at C5/C6 that has a compression of the thecal sac which is described in the dialogue back and forth from Costumenational and Dr. Flanagan. I had treatment for the neck problems by a M...uscular Skeletal Specialist who also sent me to a Cranio Sacral therapist, who said there were problems with fliud flow in my spinal cord near the area in question. When I had a lumbar Punch soon after to help with MS dx I had severe Head Aches for six weeks plus which eventually over months subsided.
The Musc/Skel Specialist said they did as much as they could for the neck and rotator (both sides) tears and I would have to live with the residual problems and to continue with the search for an explanation of the MS type symptoms. It took a further 18 months before a 20mm legion was found on the C2 area as well as 4 lesions within my brain.
After reading the situation with Costumenational I am interested in your opinion of my situation and any recomendations for me. Thanks in advance, Nigel.
I understand that you don't have enough info to give an opinion of substance, I am interested to know if I should follow up on what was originally found with my neck injuries. At present the DHB Neuro has told my GP there is nothing more he can do, and to contact if anything dramatic happens to indicate a relapse type situation, whereby I would be put on IV Seriods. This was tried when my eye sight started to become slowly effected, and VEP's indicated slowed reaction from my right eye, it had no benefit at all.See MoreAbout CCSVI | Alzheimer's, Parkinson's and Multiple Sclerosis
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