This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi all

Here's a list of upcoming presentations at the ECTRIMS 2010 Conference.

Unfortunately, I couldn't locate links to abstracts of the presentations. I obtained the list by searching "CCSVI" in the scientific program. Ectrims 2010 Gothenberg, Sweden

Anyone planning to attend and report back?


Wednesday, October 13, 2010
12:35 - 12:45 European Charcot Foundation
Chronic cerebrospinal venous Insufficiency. Relation to multiple sclerosis? (Main Auditorium)

CCSVI: from hypothesis to reality
P. Zamboni (Ferrara, IT)

12:45 - 13:00 European Charcot Foundation
Chronic cerebrospinal venous Insufficiency. Relation to multiple sclerosis? (Main Auditorium)
CCSVI: relation to multiple sclerosis
R. Zivadinov (Buffalo, US)

13:15 - 13:30 European Charcot Foundation
Chronic cerebrospinal venous Insufficiency. Relation to multiple sclerosis? (Main Auditorium)
Questions on CCSVI in multiple sclerosis
O. Kahn (Detroit, US)

Thursday, October 14, 2010
15:30 - 17:00 Imaging 1
MRI results of blinded chronic cerebrospinal venous insufficiency study in patients with multiple sclerosis, healthy controls and patients with other neurologic diseases P 318

R. Zivadinov, G. Cutter, K. Marr, M. Ramanathan, R.H.B. Benedict, M. Elfadil, N. Bergsland, C. Morgan, E. Carl, D. Hojnacki, E. Yeh, L. Willis, M. Cherneva, S. Hussein, J. Durfee, C. Kennedy, M. Dwyer, B. Weinstock-Guttman (Buffalo, Birmingham, US)

15:30 - 17:00 Genetics/transcriptomics 1
Associations of HLA DR*1501 status and chronic cerebrospinal venous insufficiency in multiple sclerosis P 265

B. Weinstock-Guttman, R. Zivadinov, G. Cutter, M. Tamano-Blanco, D. Badgett , K. Marr, E. Carl, M. Elfadil, C. Kennedy, M. Ramanathan (Buffalo, Birmingham, US)

15:30 - 17:00 Therapy disease-modifying - Others 1
Endovascular treatment for chronic cerebrospinal venous insufficiency in multiple sclerosis. A longitudinal pilot study P 508

P. Zamboni, R. Galeotti, B. Weinstock-Guttman, G. Cutter, E. Menegatti, A.M. Malagoni, D. Hojnacki, M. Dwyer, N. Bergsland, M. Hiennen-Brown, A. Salter, C. Kennedy, I. Bartolomei, F. Salvi, R. Zamboni (Ferrara, IT; Buffalo, Birmingham, US; Bologna, IT)

Friday, October 15, 2010
09:45 - 10:00 Platform presentation of selected abstracts I (Congress Hall)
No evidence of chronic cerebrospinal venous insufficiency in clinically isolated syndrome suggestive of multiple sclerosis 81

C. Baracchini, P. Perini, M. Calabrese, F. Causin, F. Farina, F. Rinaldi, P. Gallo (Padua, IT)

10:00 - 10:15 Platform presentation of selected abstracts I (Congress Hall)
Presence and severity of chronic cerebrospinal venous insufficiency is related to lower brain parenchyma venous vasculature visibility on susceptibility-weighted imaging in patients with multiple sclerosis 82

R. Zivadinov, G. Poloni, C. Schirda, C. Magnano, E. Carl, N. Bergsland, D. Hojnacki, C. Kennedy, F. Parker, M. Dwyer, B. Weinstock-Guttman (Buffalo, US)

15:30 - 17:00 Therapy disease-modifying - Others 2
Safety and complications related to endovascular treatment for chronic cerebrospinal venous insufficiency in multiple sclerosis patients P 914

M. Simka, T. Ludyga, M. Kazibudzki, M. Hartel, M. Swierad, J. Piegza, P. Latacz, L. Sedlak, M. Tochowicz (Katowice, Zabrze, PL)

15:30 - 17:00 Imaging 2
Use of magnetic resonance venography for visualisation of the internal jugular veins in patients with multiple sclerosis diagnosed with chronic cerebrospinal venous insufficiency and treated with percutaneous angioplasty P 773

A. Lopez-Soriano, R. Zivadinov, R. Galeotti, D. Hojnacki, E. Menegatti, C. Schirda, A.M. Malagoni, K. Marr, C. Kennedy, I. Bartolomei, C. Magnano, F. Salvi, B. Weinstock-Guttman, P. Zamboni (Buffalo, US; Bologna, IT)
15:30 - 17:00 Clinical assessment tools 2

Clinical correlates of chronic cerebrospinal venous insufficiency in multiple sclerosis P 653

B. Weinstock-Guttman, G. Cutter, K. Marr, D. Hojnacki, M. Ramanathan, R.H.B. Benedict, C. Morgan, E.A. Yeh, E. Carl, C. Kennedy, J. Reuther, C. Brooks, M. Elfadil, M. Andrews, R. Zivadinov (Buffalo, Birmingham, US)

15:30 - 17:00 MS symptoms 2
Correlation of localisation and severity of extracranial venous lesions with clinical status of multiple sclerosis P 641

M. Simka, T. Ludyga, M. Kazibudzki, A. Adamczyk-Ludyga, J. Wrobel, P. Latacz, J. Piegza, M. Swierad (Katowice, PL)

15:30 - 17:00 Pathology 2
Chronic cerebrospinal venous insufficiency is an unlikely cause of multiple sclerosis P 663

B. Yamout, A. Herlopian, Z. Issa, R.H. Habib, A. Fawaz, J. Salameh, H. Wadih, H. Awdeh, N. Muallem, R. Raad, A. Al-Kutoubi (Beirut, LB)

15:30 - 17:00 Imaging 2
Multiple sclerosis patients with chronic cerebrospinal venous insufficiency present with increased iron concentration on susceptibility-weighted imaging in deep-grey matter P 774

R. Zivadinov, M. Heininen-Brown, C. Schirda, C. Magnano, D. Hojnacki, C. Kennedy, E. Carl, N. Bergsland, S. Hussein, M. Cherneva, L. Willis, M. Dwyer, B. Weinstock-Guttman (Buffalo, US)

15:30 - 17:00 Diagnosis & differential diagnosis 2
No evidence for cerebro-cervical venous congestion in patients with multiple sclerosis P 579

F. Doepp, F. Paul, J.M. Valdueza, K. Schmierer, S.J. Schreiber (Berlin, Bad Segeberg, DE; London, UK)


Now, we get to wait for all the content.....I'm guessing this last German presentation will more or less mirror what's already been published.

Take care all...

Sharon

Fantastic list!


Can anyone help me interpret what lower brain parenchyma venous vasculature visibility means?

So I guess the news is good from BNAC, or they wouldn't be spending all that time on presentations?

wow!!





Had to look that one up... my 'stab at it'.. "there is a relationship between the severity of ccsvi and the ability to 'see' the lower brain's vascular structure in SWI of MS patients"... so if we see 'this' we can assume 'that'?

My take is that if you use SWI, you're gonna see indications of CCSVI severity in the lower brain case vasculature. Apparently we can image some kind of marker for severity there. Probably iron,but whadoiknow?

Whether this relates directly to disability or other symptoms, you have to wait for this paper....

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

Here's something that comes up when I google it.

http://onlinelibrary.wiley.com/doi/10.1 ... 8/abstract

Dr. Haacke is one of the authors, I just don't understand what is meant by it exactly....


So they've associated the diminished visibility of cerebral venous vasculature with MS, then also associated the diminished visibility of lower brain parenchymal venous vasculature with CCSVI....

Here also are some presentations by Zamboni at the April Toronto AAN meeting, so maybe this has been covered before & I'm just getting thrown by the terminology.

This is fascinating.. i 'read' it twice and it sounded to me that the dimished vascular system was hypothesized to be as a result of the lesions..


and then..or is it the other way around?...



To me this is another 'makes sense' scenario. If blood flow is impeded.. vessels diminish..

Sounds like a catch-22. The decreased oxygen utilization leads to decreased oxygen extraction. And decreased extraction means there is less to utilize. Deoxyhemoglobin decreases why?

Decreased visibility of veins, it seems to me, sounds like they are there but we can't see them? Maybe because there is no blood in them? I thought blocked veins meant there is blood, it's just slow-flow.



Vessels diminish, and we react with new corollary veins?

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

This 'guess what the paper says without buying a copy' game is fun...

The first time around I missed the phrase "Severe CCSVI" which sounds like it's worse than the usual CCSVI; perhaps the news is we can diagnose CCSVI severity? (without reference to MS symptoms or severity?)

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

what I love about this is just how many references to CCSVI there are at ECTRIMS this year compared to last. A year ago I saw my neuro and when I brought up CCSVI (for the second time with him), he said he was going to ECTRIMS, and if it was anything in MS, it would be presented there. HA!

Is the buffalo team studying relation of CCSVI to genes?
If this is true, its really a news to me!!!

_________________
A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck

Once these papers are presented are they available, or do you have to wait for them to be published?

This would be a good thing if it were not Randomized, Placebo-controlled, really I don't care too much about the blinding... A multi-center large-scale study that includes Liberation for every person formerly diagnosed with MS! Could be paid for by savings to insurance companies and government health- care.

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

Thanks for the schedule, Shayk. Very interesting to see some new names here. The MS Center of the Veneto, Italy region is represented by the neurologists from there---their other research has been on cyclophosphamide therapy for MS and immune phenotypes. Always interesting to see who doesn't find CCSVI....

Hope Holly from Accelerated Cure is going. I can't get away...October is crazy busy this year.
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

How exciting. Will this eventually be seen on youtube?? I hope. Watching this live will be a thrill.