This Is MS Multiple Sclerosis Community: Knowledge & Support

Is "Liberation" similar to "The Emperor's New Clothes?


Hans Christian Andersen, 1837.

No, but the parallels to the immune theory are striking. Thanks for pointing this out.

Great quote..some similarities. I loved that it pointed out no matter what happens in treatment, whether some or all symptoms disappear, it is important to be proud of yourself. I will be, the decision to go with all this controversery was extremely difficult. Maybe I will take quote with me in December.

I had no immediate improvements, wrote everywhere about it, now 3 months later I feel more energy, and that's it. For me, quite enough. But people need to hear the whole truth before they build there wall of expectations. However, what caused me 3 relapses before the procedure, and I am freed from now - is the fact that I did everything in my power available at the moment. Now I sleep just fine.

I'm just nervous because I did not (yet) get my dreams back. But there have been lots of other placebo effects which lead me to think I have done the right thing. No progression I can measure, but it's early days yet.

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

Will you still be proud of yourself if you:
and they just ...

http://hca.gilead.org.il/emperor.html
But dont take me wrong...I admire your decision and your choice... its yours and nobody is in your skin except you.

Best regards,

Mladen.

I hope the days to come bring more of the good...and the nights, if we are talking literal dreams? There are also daydreams and hopes & dreams. I hope you never see another day of progression, I do not think that is too much to hope for.

I had some really really strange ones in the months following the procedure. I'm talking kaleidoscope vivid "every neuron firing on all cylinders feel like I'm awake and walking around the room" stuff. I'd swear it was an LSD trip, but never used LSD lol. Not so much any more, but there was definitely stuff going on up in the noggin in those months of adjustment, whatever it was. Perhaps freshly oxygenated brain cells getting used to working again???

Mark

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RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap

Is there a correlation between not having dreams and MS? I dream frequently. Sometimes they're wierd dreams. Sometimes they're nice dreams. Sometimes I dream that I can run like the wind. But when I wake up I still have MS and I still can't run.

That is why we do studies. Patients with MS desparately want a cure, and are hopeful that CCSVI may prove fruitful. If you are implying that merely because CCSVI generates interest and hopefulness, and that is somehow wrong, I think that is sad. I moved and was trying out to a new neurologist, and asked if he heard of CCSVI. He said "no, but he knew what it was about. It was another crazy theory like some birdbrained Dr. in Florida had come up with that didn't pan out." He didn't even know what it was, and he was sure if it gave MS patients some hope, it had to be wrong.

The implication is that hopeless and despondent is somehow the natural and unavoidable proper state for MS patients. Of course we need to be skeptical and scientific in our investigtation of this new theory, but it makes sense and certainly deserves study. Remember, anctedotal evidence may not be conclusive, but it is, after all, evidence.

fogdweller, there is no fog there today. You stated that concisely and eloquently. Bravo!

fogdweller's name comes from the locale where he lives, not the quality of his cognition, which is as always excellent!

It makes no sense to me, at all.

M.

I guess I don't know why the autoimmune theory does make sense to some.

a. MS does not meet all of the criteria to be defined as autoimmune.
b. The antigen to cause the autoimmune response has never been identified.
c. Immunosuppressants do not halt, and arguably do not alter, the course of the disease. One would think that it would.

But, again, I can only speak from my experience. I have taken a variety of drugs for my symptoms- none, and I mean NONE, made me feel the way that I do today. None.

If that means I am walking down the street naked in front of throngs of people (ala the Emperor), well, at least I am WALKING DOWN THE STREET. Balanced. Strong.

Not to mention looking damn fine as well.

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Three veins angioplastied.  One renewed life.  

Well said!!!