This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Fri May 24, 2013 9:23 am


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 57 posts ]  Go to page Previous  1, 2, 3, 4
Author Message
 Post subject:
PostPosted: Fri Oct 29, 2010 5:28 am 
Offline
Family Elder
User avatar

Joined: Sun Mar 28, 2010 3:00 pm
Posts: 106
Here comes another "wait and see" experience...Angios in Albany in July, ...no immediate, noticeable, improvements.....
3 months later, the f/u ultrasound showed that the ballooned jugs were still patent and the blood flowing "nicely". The ballooned azygos vein could not be visualized, bu it was assumed patent. [fingers crossed] I must say I was somewhat taken back when I was told that two Zamboni criteria were still present, but that didn't justify a re-do. They were "insignificant" (?) So I wait now for 6 months more for another visit and ultrasound.
I must say, though, I am just now beginning to feel a bit more strength in my left leg [the one most effected]..Maybe it's wishful thinking or something...We'll see. I was told to be patient and exercise cautious optimism, so I guess that's where I stand [pardon the pun]now,
Good Luck to all of us "wait and see"ers! :roll: :?: :?: :?: :?:


Top
 Profile  
 
 Post subject:
PostPosted: Mon Nov 08, 2010 12:49 pm 
Offline
Family Member
User avatar

Joined: Tue Jan 12, 2010 4:00 pm
Posts: 82
Location: Pittsburgh PA - USA
Update

Week 8 of 12 - a little late :P
No Change

Current Negative Results:
none

Current Positive Results:
• Dream
• Foot Spasms at night controlable/gone


Top
 Profile  
 
 Post subject:
PostPosted: Sun Nov 14, 2010 7:30 pm 
Offline
Family Member
User avatar

Joined: Tue Jan 12, 2010 4:00 pm
Posts: 82
Location: Pittsburgh PA - USA
Update

Week 9 of 12
No Change

Current Negative Results:
none

Current Positive Results:
• Dream
• Foot Spasms at night controlable/gone


Top
 Profile  
 
 Post subject:
PostPosted: Thu Nov 18, 2010 4:19 pm 
Offline
Family Member
User avatar

Joined: Tue Jan 12, 2010 4:00 pm
Posts: 82
Location: Pittsburgh PA - USA
Update

Week 10 of 12
No Change

Current Negative Results:
none

Current Positive Results:
• Dream
• Foot Spasms at night controlable/gone


Top
 Profile  
 
 Post subject:
PostPosted: Sun Nov 28, 2010 11:14 am 
Offline
Family Member
User avatar

Joined: Tue Jan 12, 2010 4:00 pm
Posts: 82
Location: Pittsburgh PA - USA
Update

Week 11 of 12
No Change

Current Negative Results:
none

Current Positive Results:
• Dream
• Foot Spasms at night controlable/gone


Top
 Profile  
 
 Post subject: ccsvi
PostPosted: Sun Nov 28, 2010 8:36 pm 
Offline
Family Elder
User avatar

Joined: Thu Dec 03, 2009 4:00 pm
Posts: 1240
Location: south western pa.
rieja, thanks for updating. wish you the best. it is still a win for sure if you are not getting worse.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Nov 30, 2010 2:16 pm 
Offline
Family Member
User avatar

Joined: Tue Jan 12, 2010 4:00 pm
Posts: 82
Location: Pittsburgh PA - USA
Pretty much I am stable.. though 3 months is hardly a trial. It will take some time before the evidence reveals itself. I still have 1/2 a week to go before my 3 month period is up.

i will be writing Dr. Mandato to see what he thinks and if I would need any further testing :)


Top
 Profile  
 
 Post subject:
PostPosted: Tue Nov 30, 2010 3:00 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8511
belsadie wrote:
I must say I was somewhat taken back when I was told that two Zamboni criteria were still present, but that didn't justify a re-do. They were "insignificant" (?)

belsadie, I'm following your story and Vivianne's, who posted up in pklittle's thread about having 3 out of 5 zamboni criteria still present the day after the procedure.

Rieja, glad to see the updates. :)


Top
 Profile  
 
 Post subject:
PostPosted: Wed Dec 08, 2010 2:07 pm 
Offline
Family Member
User avatar

Joined: Tue Jan 12, 2010 4:00 pm
Posts: 82
Location: Pittsburgh PA - USA
Update

Week 12 of 12
Noticed that when I look down I no longer have the pins and needles running along my extremeties. It used to be that if I touched my chin to my chest, this feeling would happen.

Current Negative Results:
none

Current Positive Results:
• Dream
• Foot Spasms at night controlable/gone
• Extremety pins and needles gone when looking down


What to do now...
Wow... after 3 months I am still unsure how the whole thing went. I am going to contact Albany and see how they would like me to proceed. Although the apparant positive results are rather insignificant versus my other symptoms, I still believe that more time is needed. I don't mind :)

I will still read all the threads here and pay close attention to others progress. I think I will update THIS thread at least once a month or if something "happens" - even just for my own "journal".

I wish that everyone that had this procedure would keep up to date here instead of trailing off... the unknown is so frustrating. ;)


Top
 Profile  
 
 Post subject:
PostPosted: Wed Apr 06, 2011 11:24 am 
Offline
Family Member
User avatar

Joined: Tue Jan 12, 2010 4:00 pm
Posts: 82
Location: Pittsburgh PA - USA
HOLEY MOLEY!

April already?!?!?

Well. here is a bit of an update:

Current Negative Results:
none

Current Positive Results:
• Dream


So, the foot spasms are back. I have not talked to Albany since then but email is going out now. I will be asking for a referral for an Ultrasound. Maybe they see if I got all clogged back up again :P


Top
 Profile  
 
 Post subject:
PostPosted: Wed Apr 06, 2011 11:40 am 
Offline
Family Elder
User avatar

Joined: Sun Mar 07, 2010 4:00 pm
Posts: 144
Cece wrote:
belsadie wrote:
I must say I was somewhat taken back when I was told that two Zamboni criteria were still present, but that didn't justify a re-do. They were "insignificant" (?)

belsadie, I'm following your story and Vivianne's, who posted up in pklittle's thread about having 3 out of 5 zamboni criteria still present the day after the procedure.

Rieja, glad to see the updates. :)


That is correct. That is why I am thinking about having a 2nd procedure. I must say despite the 3/5 criteria still present I did see some benefits. Going on 6 months now, I have more energy and better bladder control. Yhe benefits started about 3 weeks AFTER the procedure.


Top
 Profile  
 
 Post subject:
PostPosted: Wed Apr 06, 2011 6:30 pm 
Offline
Family Elder

Joined: Mon Sep 04, 2006 3:00 pm
Posts: 414
Location: LeftCoast Canada
I had immediate results (fatige/cog-fog) but it only lasted 8 days. Tested positive for 2/5 Zamboni criteria day after procedure. Considering second procedure but holding off as I feel we're still on the steep part of the learning curve. Hopefully we'll see IR Best Practices/Consensus Doc before year's end?!

PN
Albany October 2010


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 57 posts ]  Go to page Previous  1, 2, 3, 4

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Successful angio - restenosis - repeat angio - problem+++

smokey

8

1576

Sun Sep 05, 2010 10:47 am

bestadmom View the latest post

There are no new unread posts for this topic. Cheer's excellent adventure

[ Go to pageGo to page: 1, 2, 3, 4, 5 ]

cheerleader

62

6358

Tue Sep 08, 2009 5:38 pm

radeck View the latest post

There are no new unread posts for this topic. LIVABIRD's Poland Adventure

[ Go to pageGo to page: 1 ... 7, 8, 9 ]

livabird

130

14930

Sat Jul 03, 2010 1:38 am

Algis View the latest post

There are no new unread posts for this topic. Livabird's Bulgaria Adventure

[ Go to pageGo to page: 1, 2, 3, 4 ]

LivabirdsHubbie

46

6470

Thu Oct 21, 2010 7:02 am

CCSVIhusband View the latest post

There are no new unread posts for this topic. Livabirds California Adventure

[ Go to pageGo to page: 1, 2 ]

LivabirdsHubbie

15

2305

Mon Jul 04, 2011 1:34 am

ErikaSlovakia View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: