This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi,
After Dr Sclafani looked at my catheter vwenogram images he said i had:
- May Thurner
- Jugular CCSVI
- Poorly developed L;umbar veins

I have had the jugulars ballooned, and am having the May Thurner treated in December - not sure if they'll balloon or stent,

But i was wondering are 'poorly developed lumbar veins' treatable?
if so, how?

Can the lumbar veins be treated at the same time as MayThurner as if they can i will request this in December

- as ive had MS since i was 16/17 and have progressed quickly, i can only guess this is down to the lumbar veins aswell as the MT/IJV stenosis, as other MS'ers dont seem to get MS this young and progress so quiickly.

thanks

You ask good questions....

This one you should ask your doctor. My understanding of the underdeveloped lumbar veins are that, at this time, they have no way to treat them.

ok thanks cece, i will see if my gp know - he probably wont


i was hoping there would be a solution, like a vein transplant maybe

I think vein transplant might be the solution down the road. But I don't think these are being done as of now.

If anyone finds a doc who is doing this on lumbar veins, with success preferably, I'd love to know about it and to pass on the name.

What Zamboni told Sclafani in Italy in June was along the lines that they check for some of these conditions because even though nothing can be done, the patient still benefits from knowing.

I don't think there's anything we can do right now. When my dr told me I had no left ascending lumbar vein, he didn't mention any possible corrections. For other veins (such as my pinched subclavian) he did mention surgery, so I think he would have told me if there were any treatments out there.

I guess I should consider myself lucky to have made it to 40 before diagnosis, if it hit you at 16.