This Is MS Multiple Sclerosis Community: Knowledge & Support

I understand Malden. I make way more typing mistakes today than I did years ago. Suprisingly it is also in this forum where my grammatical errors were pointed out as well. Just keep in mind it is done to minimize you comments regarding CCSVI. If we are such blubbering fools how can anything we say have any value, right? You wouldn't think a forum where you go for support would be the place to make fun of a disabilty but hey I guess it happens. T Please keep your thoughts and comments coming!

On either levels, someone who think that:

"...the brain to be like a barrel with two openings.
take two hose and place them in the openingsl
push water into one hose and let it drain through the other hose
by regulating input and output you can get a steady state to keep the fluid in the barrel to the same level..."

has no clue what is talking about.

M.

It's you two, right?

Come on. I went on stupid facebook but that's not enough for you people is it?

I know you WANT to believe, but the truth is out there.

Sorry. I don't do much on Facebook. Not really in need of a forensic analysis of the people in this place. The wind is blowing, but as in a peloton, the riders can share their energy and ride against it, with the first and strongest riders taking more punishment. The order circulates, so that each can have a rest at the back. It works, and a good race is run in spite of gusts and gales.

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

I don't even know who is supposed to be whom to be honest.

A moderator sees IP addresses beside everyone's posts in this forum (and forums like it). Would end speculation. To be honest I thought Malden was what is called a 'sock puppet' on some other forums. A second account. I thought that because his grasp of English fluctuated so wildly. Some of the spelling mistakes didn't seem too authentic to me either. Like someone pretending not to be proficient. But if he says it's down to MS then who am I to argue?

To be honest, I don't know why I made that post before because I don't really care whether or not Malden is a second account, Colin Rose in disguise or a genuine user. In which case, apologies Malden. Although I have a feeling you are thick skinned enough not to be offended.

But I'm not suggesting big pharma is behind anything. Interesting idea you've come up with there though Lyon, hmm..

1. 100% is not unbelievable when given the small sample size and the reduced chance of misdiagnosed MS patients given that the group were selected.
2. People want the MS societies to fund such studies.
3. But they are, by and large, ineffective.
4. That's actually not true.
5+6. I strongly disagree, at any rate, none of those patients are complaining.
7. Neither here nor there.


People claiming 'conspiracy' has absolutely no bearing on the research whatsoever. None.



If it weren't for social media we wouldn't be discussing this today, true.

Aplogies accepted. I can't be offended by an anonymous chalk marks on a black board.

Btw, what's your opinion on brain-barrel analogy?

M.

I know I was not asked. But I would like to address the brain-barrel analogy. The statement that this is unrealistic does not come from a genuine attempt to understand. We have all seen the statements like: it's all ok, there are plenty of collateral veins, and veins are so flexible, etc. But try to understand what was meant... if the heart (sp?) cannot get new blood in fast enough because the old blood has filled the available space and is not draining out fast enough, what is so hard to understand? The vein system, as Dr. Sclafani has said, is low pressure, high volume. Perhaps it is a language barrier thing, but I don't think so.

Another negative person on this forum, a Mr. Colin Rose, also seems to think that by repeating what he has already decided is wrong, and never actually trying to understand it, somehow he is convincing everyone it is wrong. I do not share your unconsidered opinions, M'laddio.

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

I didn't know that he posted on this forum.

No, no, no. I was generalizing and that wasn't specifically aimed at you.

This is a very different way from how I was looking at it. I meant no offense.

FYI to all, in many cases a member can have a long list of IP addresses associated with their TIMS usage... myself included!

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

True, true. But what you look for is different accounts using the same IP address, especially within close proximity. It can happen without it being the same person (e.g. two users using the same public WIFI), but not likely.

Dr. Sclafani has addressed this in his thread. He believes that it is unethical to sedate people to the extent that would be necessary such that they could not tell whether or not they were actually treated. Many people treated for CCSVI have reported that it was obvious when the balloon was being inflated. Sedation would expose people to unnecessary risk. Moreover, simply inserting a catheter into the jugular or azygous vein may clear out some obstruction. There are many types of blockages including a septum, a thin membrane blocking the vein, which could be cleared via a catheter insertion. Moreover, Zamboni's paper states that the doctors evaluating the patients were blinded to an individuals MS status.



Pharmaceutical companies do this all the time. Remember Avonex + Tysabri? Copaxone with Revimmune? Copaxone with Novantrone? Anyways, MS/CCSVI may be a disease of chronic immune activation and continuation of DMDs may be prudent to help correct the chronically activated immune system.



False. Zamboni published in peer reviewed science journals well before the rest of us found out about it.



Really? How else would you suggest he test his hypothesis that restricted blood flow may be a contributing factor to the disease of MS?



This has been discussed elsewhere on the forums here at ThisIsMS. Zamboni did not operate on his own wife. Moreover, it may be the case that it's unlikely that he's personally operated on anyone recently. Have you watched the videos of his interviews? If you were paying attention, then you would have noticed something unusual about his hands. In one video he handles a computer mouse as though he were wearing a ski mitten. In another, he moves his hand over to rest it down on his other arm and it appears to be more of a flop type of motion. If you've read about Zamboni, then you may have discovered that he has an unknown (at least to me) neurological condition. Clearly, this seems to be affecting his hands (or at least one of them). Again, I doubt that he operated on his own wife. However, he may have directed the operation. I see no ethical problems with this if that were the case.



The use of the word liberation by Zamboni is meant that his procedure liberates the blood flow. As far as I know, it has nothing to do with "liberating people from MS." I believe that this is common misunderstanding. Even Dr. Andrews, an IR in support of CCSVI treatment and research, makes this error in his video.

NHE
.
.
.

_________________
Entropy is maintenance free.
Time wounds all heels.