Just for fun, look how puzzled are still some researches

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Just for fun, look how puzzled are still some researches

Postby frodo » Fri Sep 17, 2010 5:00 am

They say "fatigue is still not completely understood", but in fact they don't have a clue.


Abstract

Fatigue is an extremely prevalent issue for multiple sclerosis (MS) patients. Fatigue can affect quality of life, depression, anxiety, motor function and sleep patterns. There are a number of available rating scales designed to detect and assess fatigue. However, the pathophysiology of fatigue is still not completely understood and the treatment of this symptom remains difficult. A number of clinical trials for fatigue in MS have shown some benefit with different interventions, including medication, physical activity and cognitive-behavioral therapy. Nonetheless, further research and the development of more targeted therapies are needed to improve the management of fatigue.

http://www.ncbi.nlm.nih.gov/pubmed/20819014
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Postby Cece » Fri Sep 17, 2010 5:36 am

Isn't it something, how defensive the neurologists have been about their theory and resistant to CCSVI theory, when theirs is full of "not fully understood" and by unknown mechanism, and ours beats theirs by actually have an explanation for things? Yes, CCSVI needs to be researched and proven, but the whole dismissing it out of hand would make more sense if they had more to stand on themselves.
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Re: Just for fun, look how puzzled are still some researche

Postby costumenastional » Fri Sep 17, 2010 5:41 am

frodo wrote:and the treatment of this symptom remains difficult


luckily they treat all other symptoms with such success hahaha
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Postby blossom » Fri Sep 17, 2010 12:37 pm

yep, most of us have heard the old drum roll-they feel it's cause is this or it could be this other thing, they think it's this that or the other thing causing ms. BUT, they have no real proof or great treatments. yet, they can dare to say that ccsvi has no connection. i still say they should put their money where their mouth is and please work hard at helping us "prove " it wrong. until then how can they have any merit.
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Postby fernando » Fri Sep 17, 2010 2:36 pm

My shrink who had an uncle who was a neurologist says that neurologists are in a very difficult position because very few things are treatable in that field.

I has to be very frustrating just to watch symptons evolve and being unable to do anything.
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Postby scorpion » Fri Sep 17, 2010 2:51 pm

Cece wrote:Isn't it something, how defensive the neurologists have been about their theory and resistant to CCSVI theory, when theirs is full of "not fully understood" and by unknown mechanism, and ours beats theirs by actually have an explanation for things? Yes, CCSVI needs to be researched and proven, but the whole dismissing it out of hand would make more sense if they had more to stand on themselves.


Reason 1 to justify why CCSVI is not accepted by the medical community:
Neuros. Those people who have a thousands of neurological disorders to treat but for some reason have focused all their time and energy on disproving the CCSVI theory. Besides some of the people on this site something tells me CCSVI is not the focal point of most people's lives.
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Postby ozarkcanoer » Fri Sep 17, 2010 4:10 pm

Chronic pain and fatigue are my worst symptoms. Not only do they not know how to control fatigue but they also do not know how to treat chronic pain. Not only are these two symptoms not treatable but they are invisible. I think that is one reason that the current research on stem cells and myelin repair don't really excite me. Both seem to be science fiction cures with no guarantee that fatigue or pain will go away. Iv'e never read a paper stating that any of the far-out research will really help these most debilitating symptoms. I guess I am just angry today because I am tired and my pain is back. I had two stents put in my IJVs on July 17. I am still going to wait for 3-4 months before I make a judgement on whether the procedure has helped me or not.

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Postby 1eye » Sat Sep 18, 2010 12:09 am

That sounds fair. If you believe it hasn't helped or is not going to, at least you'll have tried. That's all we can ask of ourselves.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby sbr487 » Sat Sep 18, 2010 1:30 am

ozarkcanoer wrote:Chronic pain and fatigue are my worst symptoms. Not only do they not know how to control fatigue but they also do not know how to treat chronic pain. Not only are these two symptoms not treatable but they are invisible. I think that is one reason that the current research on stem cells and myelin repair don't really excite me. Both seem to be science fiction cures with no guarantee that fatigue or pain will go away. Iv'e never read a paper stating that any of the far-out research will really help these most debilitating symptoms. I guess I am just angry today because I am tired and my pain is back. I had two stents put in my IJVs on July 17. I am still going to wait for 3-4 months before I make a judgement on whether the procedure has helped me or not.

ozarkcanoer


Correct, OC. Sometimes I get so frustrated that fatigue and pain does not even get a proper mention ...
its always like if there is no scientific explanation then it does not even exist ...
A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck
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