This Is MS Multiple Sclerosis Community: Knowledge & Support

Concerned, 1eye, couldn't you discuss this elsewhere? It has nothing to do with the german neuro's press release. Thank you!

Minutes ago, Doro, who went with Bonfire to the press conference has written this in the csvi-ms.net forum:

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"There is only one good, knowledge, and one evil, ignorance." Socrates

yes. please.



thanks for giving us Doro's report, cah. I'm glad that the MS patients- the people who suffer from this disease- were allowed to attend the press conference and give additional information. I'm still not sure why the German Neurological Society felt this conference was necessary....but at least another perspective was represented. good work,
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

exactly.

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

The press conference wasn't all about CCSVI, it wasn't even all about MS. It was the press conference of the Neurowoche (neuroweek) symposium. The CCSVI treatment was one of several topics. It seems a bit that they needed a more catchy topic than "Um, well, there's a neurological meeting..." for the german press. Let's hope so!

Doro told me that they spoke much more softly about CCSVI in the press conference than in the press release.

But that doesn't make their press release any better, and this is what was published widely in the media !

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"There is only one good, knowledge, and one evil, ignorance." Socrates

They have now published a new press release. Maybe our efforts had some tiny effect, as it is much less off the mark. Zamboni's work is now "scientifically unproven" and "Studies show that the theories of Dr. Zamboni are untenable". Treatment is "unjustified" according to the existing Data. Cases of death are now "sporadic"... well, the step in the right direction is very, very tiny.

Still it has some major mistakes in it (As we all know, Zamboni isn't recommending stents, but that's exactly what the press release says).

Especially the last paragraph might be of interest to you, as the canadian MS Society and the CIHR is named:



They provide links to three works of Dr. Zamboni, one of Doepp and one of Khan, but not to the statements of CIHR or MSSC. Can someone show me a link where they called Dr. Zambonis work "worthless and ethically questionable"?

I don't know for sure, but I think there is no such statement (except for the DMSG). Perhaps somebody could ask someone of the CIHR or the MSSC if they think it's ok that german neuros (DGN) quote them wrong...

Here's the link to the original: http://www.klinikum.uni-heidelberg.de/f ... _final.pdf Funny that it has no date and isn't released on the website of the DGN, but in the download section of the Heidelberg University Hospital and not shown in their website section "press releases".

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"There is only one good, knowledge, and one evil, ignorance." Socrates

at one point the new German release says: ... there is not enough prove...
I hear exactly the same from neurologists over here.

but I ask myself, and I ask them, prove of what?
never got an answer, still the question is an important one.

it may be true that we do not know the whole cascade of effects that causes MS; the video's of the Sclafani event are instructive.

but is that the question to be answered?
perhaps for the neurologists, it is.

but for the patients and the other doctors, perhaps that is not so important.
for them, what counts is what does a proper bloodflow for the patient.
and this may be underlying the difference of views all around.

apart from that, this press statement has some gross errors, is very tendentious. ba..

august 5, 2010, an editorial was published bij ccsvi.nl. In this editorial they show, using de German data, that Doep et. al have found evidence for CCSVI in their paper. They are misinterpretating their own data, ha ha!

In a recent interview with dr. Zamboni by ccsvi.nl, dr. Zamboni confirmed their (ccsvi.nl's) findings.

http://www.ccsvi.nl/Opinie/CCSVInl/DuitsOnderzoek.aspx

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I'm ready, I'm ready !

One of the best find, Joge. Lets hope pioneers dig out more and the truth comes out soon ...

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A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck