Yes, the You-tube video is scientifically worthless. Yes we who have a stake in our own personal health, should watch the W5 episode and listen to Dr. Zamboni say this is not a cure. We should manage our own expectations. While we do that, a lot of ordinary individuals see the kerfuffle around the Liberation procedure, and come away thinking a lot of bizarre things. A propaganda war is being fought here, and there are excellent propagandists selling the latest story to buyers of newspapers, watchers of TV, and listeners to radio. The latest story is often designed to distract people from what is actually happening.
This U-Tube video: people who have not already made up their minds will, mainly, not even see it. But other people see things. They don't think much about them at the time. They repeat them, thinking the authority is good enough, and they read them in the paper, so they must be true. People use them in unrelated arguments. And these attempted facts acquire a life of their own, independant of veracity or accuracy.
Today in the Ottawa Citizen Kelly Egan said "As Sam (the woman the story was about, who went to Mexico to get Liberated) points out, it is neurologists themselves, not witch doctors, who are building the case for scientific credibility." Then, immediately, a quotation. Leading you to believe it was Sam who said it: "We see it as one more potential tool in the arsenal to fight this disease."
But there is nothing that actually *says* Sam said it. Did Sam really say it? It sounds to me like something a neurologist would say. So there is no direct quote from Sam saying what she is supposed to have said, and an unattributed direct quote that does not sound like something Sam would have said. Sounds like rats abandoning ship. Both statements are liable to be believed, and repeated. That's how propaganda works. But it hardly jibes with what we have recently heard from on high at the neurology conference in Germany, does it? Doesn't it sound to you as if, far from building any case for scientific credibility, many prominent neurologists are (vainly, but loudly) trying to build a case *against* the scientific credibility of Liberation? It would be nice if General Practitioners would end the madness, and start sending 'MS'/CCSVI patients for a new first-line treatment, a simple vascular procedure, and let the chips fall where they may.
It would be nice if Canadian IRs and vascular surgeons asserted their mandate to help sick people get better.
That may be the intent of the woman in the video. It is only doctors themselves who can do this, no matter how pretty her diagrams are. Only doctors themselves who can start thinking of medicine as an art again, compatible with it being a science too. Without the support of the general doctor, all the pronouncements of the Health Ministry, the CIHR, the MS Society, the neurologists, the drug czars, and the IRs, are chaff in the wind.
This procedure does not need a national, gazebo-controlled, blinkered study. It needs a set of bona fide documented practises, a qualification that someone can hang on their wall, and some muscle behind it.
Lives are at stake. Why are people still arguing about witch doctors, quackery, and miracle work?
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
I am not a doctor. Do not take anything I say as medical advice.