We have all been deeply moved by the heroic fight that many MS sufferers and their families have endured in trying to obtain CCSVI treatment.
For some, it was their last hope and yet they were denied a simple venoplasty, even on compassionate grounds.
Sadly, many did not make it. Perhaps fixing their blocked veins may have saved them, or perhaps it may have made their last days on this beautiful planet less painful.
We shall never know. It is to them that we wish to pay tribute: their courage and spirit is what inspires people in the MS community to fight for each individual's right to have access to a standard, safe procedure that is available to anyone in Canada except those who have MS.
We are organizing a rally on Parliament Hill and at the Manitoba Legislature on Monday, September 20th, 2010 (Click HERE for more info). We are going to have a moment of silence to honour all those MS sufferers who lost their lives to this illness since the discovery of CCSVI.
Also, if you know anyone who has passed away and you wish that their names be read out loud at the rally, please send their names, age, province, and the date they passed away. Please note that we need permission from their family members to honour them publicly, as we want to respect each family's way of grieving. Photos would also be most welcome.
Please send the information to: email@example.com by Sunday September 19th.
Rebecca Cooney and Andrew Katz
Co-founders of MS Liberation
For more information on the rallies: http://www.msliberation.ca/MS_Liberatio ... SL_II.html
1eye wrote:I failed in my attempt to collect names to be read on Parliament hill. But we're going to honour them with a moment of silence. Because nobody believes the people that have died on waiting lists could not have been saved by Liberation.
Cece wrote:...there are so many IRs coming onboard, there will not be these months-long waiting lists. The people who want treatment (and can travel if necessary) will get treatment.
It feels like the start of a new era once again, with all of the IRs who have applied to Dr. Hubbard. CCSVI is breaking big?
If so, this statement by this cardio doctor needs to be read against a very different background and context than challenging ccsvi itself.
The number of times 'money' appears in his statement would in any case suggest that he is thinking about something else than just the merits of ccsvi liberation.
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