This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi,

After being dx ppms in Sep 09, I immediately started to take care of my CCSVI
At that time I had 9 lesions in my brain and 1 in my spinal cord.

Surprise, when I stated to fix my CCSVI, the evolution of my ms magically stopped

12 months later, the neurologist told me that all lesions were cured but they hadn’t disappeared after healing. Indeed, the scars were still visible on the MRI

Today, I feel much much much better than one year ago BUT I still have a walking issue as scars are still in my brain and spinal cord

So stopping the disease is one step, and I am pretty sure CCSVI might be the key for that (my neurologist was surprised to see me like that after 12 months , but I didn’t speak about CCSVI with him as I know he is convinced that ms has no link with it )

For those who did not meet dramatic improvements after CCSVI operations, the above can be an explanation: lesions can be cured but scars will still prevent some symptoms from improving. In that case, reeducation should be (according to my “stunned” neurologist) the path for complete recovery

We are getting to our goal, we will cure this d..n disease!

Cheers

Hi Zen,
This is one of the best pieces of advice i've seen.. thank you

by takeing care of your ccsvi i assume you had angioplasty. if so, where were you stenosed and how bad?

This is so true. Even if you can derail the attack mechanism of MS, you are still left with damaged goods when it comes to our brains and spinal cord. For the complete cure, we are going to need remyelination drugs to come to market, or something of the sort.

Blossom, that is very unlikely to be the case. He is luckily in China where they seem to have natural way to thin the blood.

As a side note, when Zen was having his headache issues, a local chinese doctor told him that vein issue can cause such terrible headaches.

Of course, I could be all wrong since this is based on pretty old interaction with Zen...

_________________
A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck

How does one explain someone who had major walking, balance issues pre angioplasty and then afterwawrd are fine, physically normal?

I'd assume such an explanation could be akin to something like this:

1. being drunk causes walking and balance issues

2. having brain damage due to chronic abuse of alcohol can cause walking and balance issues

In the first situation, if you sober someone up, get the oxygen flowing to the brain again, they will walk normally and not display balance issues. In the second situation, sobering them up will prevent further injury but will not heal the damage that has already occured and will not return them to their prior, pre-abuse baseline.

Hi Blossom,

I had no angioplasty; I take natural medicines (herbs) on a daily basis to thin my blood.

I was convinced I had a stenosis but, in fact, my right jugular is thinner than my left one.



Hi SBR,

You are all right!

Cheers

Hi Blossom,

I had no angioplasty; I take natural medicines (herbs) on a daily basis to thin my blood.

I was convinced I had a stenosis but, in fact, my right jugular is thinner than my left one.



Hi SBR,

You are all right!

Cheers