Beware of scars after lesions recovery

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Beware of scars after lesions recovery

Postby zen2010 » Sat Sep 18, 2010 8:57 am

Hi,

After being dx ppms in Sep 09, I immediately started to take care of my CCSVI
At that time I had 9 lesions in my brain and 1 in my spinal cord.

Surprise, when I stated to fix my CCSVI, the evolution of my ms magically stopped

12 months later, the neurologist told me that all lesions were cured but they hadn’t disappeared after healing. Indeed, the scars were still visible on the MRI

Today, I feel much much much better than one year ago BUT I still have a walking issue as scars are still in my brain and spinal cord

So stopping the disease is one step, and I am pretty sure CCSVI might be the key for that (my neurologist was surprised to see me like that after 12 months :lol: , but I didn’t speak about CCSVI with him as I know he is convinced that ms has no link with it )

For those who did not meet dramatic improvements after CCSVI operations, the above can be an explanation: lesions can be cured but scars will still prevent some symptoms from improving. In that case, reeducation should be (according to my “stunned” neurologist) the path for complete recovery

We are getting to our goal, we will cure this d..n disease!

Cheers
User avatar
zen2010
Family Member
 
Posts: 31
Joined: Mon Mar 15, 2010 4:00 pm
Location: Villeurbanne, France

Advertisement

Re: Beware of scars after lesions recovery

Postby PCakes » Sat Sep 18, 2010 9:00 am

zen2010 wrote:Hi,

After being dx ppms in Sep 09, I immediately started to take care of my CCSVI
At that time I had 9 lesions in my brain and 1 in my spinal cord.

Surprise, when I stated to fix my CCSVI, the evolution of my ms magically stopped

12 months later, the neurologist told me that all lesions were cured but they hadn’t disappeared after healing. Indeed, the scars were still visible on the MRI

Today, I feel much much much better than one year ago BUT I still have a walking issue as scars are still in my brain and spinal cord

So stopping the disease is one step, and I am pretty sure CCSVI might be the key for that (my neurologist was surprised to see me like that after 12 months :lol: , but I didn’t speak about CCSVI with him as I know he is convinced that ms has no link with it )

For those who did not meet dramatic improvements after CCSVI operations, the above can be an explanation: lesions can be cured but scars will still prevent some symptoms from improving. In that case, reeducation should be (according to my “stunned” neurologist) the path for complete recovery

We are getting to our goal, we will cure this d..n disease!

Cheers


Hi Zen,
This is one of the best pieces of advice i've seen.. thank you :)
User avatar
PCakes
Family Elder
 
Posts: 849
Joined: Sun Dec 13, 2009 4:00 pm
Location: Canada

Postby blossom » Sat Sep 18, 2010 10:11 am

by takeing care of your ccsvi i assume you had angioplasty. if so, where were you stenosed and how bad?
User avatar
blossom
Family Elder
 
Posts: 1324
Joined: Thu Dec 03, 2009 4:00 pm
Location: south western pa.

Postby Jugular » Sat Sep 18, 2010 10:16 am

This is so true. Even if you can derail the attack mechanism of MS, you are still left with damaged goods when it comes to our brains and spinal cord. For the complete cure, we are going to need remyelination drugs to come to market, or something of the sort.
User avatar
Jugular
Family Elder
 
Posts: 375
Joined: Mon Dec 21, 2009 4:00 pm

Postby sbr487 » Sat Sep 18, 2010 10:18 am

blossom wrote:by takeing care of your ccsvi i assume you had angioplasty. if so, where were you stenosed and how bad?


Blossom, that is very unlikely to be the case. He is luckily in China where they seem to have natural way to thin the blood.

As a side note, when Zen was having his headache issues, a local chinese doctor told him that vein issue can cause such terrible headaches.

Of course, I could be all wrong since this is based on pretty old interaction with Zen...
A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck
User avatar
sbr487
Family Elder
 
Posts: 860
Joined: Tue Nov 24, 2009 4:00 pm
Location: India

Postby thornyrose76 » Sat Sep 18, 2010 12:49 pm

How does one explain someone who had major walking, balance issues pre angioplasty and then afterwawrd are fine, physically normal?
User avatar
thornyrose76
Family Elder
 
Posts: 462
Joined: Mon Nov 23, 2009 4:00 pm

Postby mose » Sat Sep 18, 2010 9:30 pm

thornyrose76 wrote:How does one explain someone who had major walking, balance issues pre angioplasty and then afterwawrd are fine, physically normal?


I'd assume such an explanation could be akin to something like this:

1. being drunk causes walking and balance issues

2. having brain damage due to chronic abuse of alcohol can cause walking and balance issues

In the first situation, if you sober someone up, get the oxygen flowing to the brain again, they will walk normally and not display balance issues. In the second situation, sobering them up will prevent further injury but will not heal the damage that has already occured and will not return them to their prior, pre-abuse baseline.
User avatar
mose
Family Member
 
Posts: 45
Joined: Wed Aug 19, 2009 3:00 pm

Postby zen2010 » Mon Sep 20, 2010 5:46 am

blossom wrote:by takeing care of your ccsvi i assume you had angioplasty. if so, where were you stenosed and how bad?


Hi Blossom,

I had no angioplasty; I take natural medicines (herbs) on a daily basis to thin my blood.

I was convinced I had a stenosis but, in fact, my right jugular is thinner than my left one.

sbr487 wrote:Of course, I could be all wrong since this is based on pretty old interaction with Zen...


Hi SBR,

You are all right!

Cheers
User avatar
zen2010
Family Member
 
Posts: 31
Joined: Mon Mar 15, 2010 4:00 pm
Location: Villeurbanne, France

Postby zen2010 » Mon Sep 20, 2010 5:49 am

blossom wrote:by takeing care of your ccsvi i assume you had angioplasty. if so, where were you stenosed and how bad?


Hi Blossom,

I had no angioplasty; I take natural medicines (herbs) on a daily basis to thin my blood.

I was convinced I had a stenosis but, in fact, my right jugular is thinner than my left one.

sbr487 wrote:Of course, I could be all wrong since this is based on pretty old interaction with Zen...


Hi SBR,

You are all right!

Cheers
User avatar
zen2010
Family Member
 
Posts: 31
Joined: Mon Mar 15, 2010 4:00 pm
Location: Villeurbanne, France


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users