Motive v. Medically Indicated

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Motive v. Medically Indicated

Postby Jugular » Sat Sep 18, 2010 11:54 am

I think Pacific Interventionalist have this spot on:
Currently the relationship between Multiple Sclerosis (MS) and CCSVI is still being defined and is debated among leading MS experts. However, many of the symptoms of central venous occlusion and stenosis seen in CCSVI are well understood and have been treated for many years. Central venous occlusion and stenosis may cause a variety of symptoms including swelling of the head, face, or neck, skin color changes within the head, face, or neck, swelling, heaviness, and throbbing of the arms, and occasionally light headedness.
If you want your stenosed veins treated by them, you have to sign a consent that includes this:
You understand that any central venograms, venous angioplasty, or venous stents are not being performed to treat any symptoms of Multiple Sclerosis. At this time the only medically proven indications for these procedures is for swelling of the head, face, or neck, skin color changes within the head, face, or neck, swelling, heaviness, and throbbing of the arms, and occasionally light headedness. Any treatments that are performed on you are for these symptoms only. Relief of MS symptoms with these therapies is still being investigated and has not been proven by in depth medical studies
Brilliant. While the medical world waits for the proof it needs, or tries to kill CCSVI by research committee, this seems like a viable option for those not wishing to wait.

Provided the proceedure is otherwise medically indicated, your motive for getting it is irrelevant. Many people get minor moles removed because raised moles can cause skin cancer and therefore their removal is medically indicated, even though many people who get a mole removed do so because they think it will make them more attractive, in spite of their being no double-blind placebo-controlled study to prove it.

I may want angioplasty because I think CCSVI is behind my MS. Maybe I want it because I think having better blood drainage from my brain will make me smarter. The benefit I hope to achieve should be irrelevant provided that it is otherwise indicated. I shouldn't be discriminated against simply because I happen to have MS.
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