The crux of aftercare (heparin/aspirin etc.)

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

The crux of aftercare (heparin/aspirin etc.)

Postby Interrupted » Sun Sep 19, 2010 5:53 pm

Is there yet a commonly accepted route to go apres procedure with -in specific- ballooning only vs stenting, or are we all sticking with what our applicable clinic tells us?

In short I guess, has anyone summarised a vague outline :?:

I'll be having the procedure in Katowice next month so will I assume be on Heparin equivalent for 7 days as a stat' thing they seem to do (seems short to me if a stent or two is in play?). But regardless i'll personally opt to take a sliding scale of aspirin for at least 6 months after to be sure. I just feel it would be good to know the upper and lower limits of which medications others are working around, and applicable to which form of treatment. Also to know which medications work on which part of blood function applicable here in one thread/sticky from someone in the know because it can be confusing. Maybe? :roll:
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Postby vivavie » Sun Sep 19, 2010 6:46 pm

This is not clear for me too!

1st procedure (April 25) Tychy Poland: 1 stent - Clexane 14 days - Plavix 6 weeks - aspirin for life.
Canadian GP extanded Plavix for 6 months total
2st procedure (August 18 RI: repair candy wrap stenosis extremity stent + angio both jug and Azygos - Plavix 1 month
3th procedure (sept 15): restenosis left jug to 2-3mm/collateral veins, 3 stents - Lovanox 5 days + Warfarin 3 months
4th procedure (sept 17): thrombosis - Lovanox additional 5 days + warfarin

It is all over from what I have been reading and asking around since April. Very very confusing!!

The stent block on Plavix, when unblock Plavix again - It blocked the 1st time while on medication why would it not block again if med was unchanged.

Now for the Warfarin I have heard 3 - 6 -12 months!!! why the discrepancy? Isn't there a clear protocol establish with arteries?

My GP was not happy when I came back from Poland with Plavix, I can imagine the fun it will be when he finds out tomorrow after my blood test that I am on warfarin LOLL
He keeps telling me that it should be my neuro to do the follow up on this and vice versa...
:roll:
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Postby dania » Mon Sep 20, 2010 9:04 am

[quote="vivavie"]This is not clear for me too!

1st procedure (April 25) Tychy Poland: 1 stent - Clexane 14 days - Plavix 6 weeks - aspirin for life.
Canadian GP extanded Plavix for 6 months total
2st procedure (August 18 RI: repair candy wrap stenosis extremity stent + angio both jug and Azygos - Plavix 1 month
3th procedure (sept 15): restenosis left jug to 2-3mm/collateral veins, 3 stents - Lovanox 5 days + Warfarin 3 months
4th procedure (sept 17): thrombosis - Lovanox additional 5 days + warfarin

It is all over from what I have been reading and asking around since April. Very very confusing!!

The stent block on Plavix, when unblock Plavix again - It blocked the 1st time while on medication why would it not block again if med was unchanged.

Now for the Warfarin I have heard 3 - 6 -12 months!!! why the discrepancy? Isn't there a clear protocol establish with arteries?

My GP was not happy when I came back from Poland with Plavix, I can imagine the fun it will be when he finds out tomorrow after my blood test that I am on warfarin LOLL
He keeps telling me that it should be my neuro to do the follow up on this and vice versa...
:roll:[/quote
Have you had the procedure done 4 times? How are you feeling now? I have had it done twice as I developed blood clots in the stent with the first one. I am going for the third Oct 12. I am sure I have more blood clots. I have been on Coumadin for the last 10 years due to 2 pulmonary embolisms. They found I have the Factor V Leiden and protein C deficiency which makes me prone to producing blood clots too easily. I have to take it for life. It might be a good ideas to see a hemotologist and get yourself checked.
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Postby vivavie » Mon Sep 20, 2010 9:34 am

Yes Dania, I have been scanned, checked and tested extensively last aut/winter when they were investigating for a 2nd cancer. I met an hemato in Feb as a last resort for unexplanable blood test results, conclusion: everything is normal?!? I have heard that before...
But thank you to have taken the time to offer suggestions.
Yes I had four procedures but only because of the blocked stent and trombosis. I am still hopeful to be able to improve my right jug and Azygos in the future :wink: ??
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Postby dania » Mon Sep 20, 2010 10:00 am

Vivavie keep me posted with any news. I had cancer (Hodgkin's Lymphoma in 92) I live in St Lazare Quebec . Why are you?
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Postby vivavie » Tue Sep 21, 2010 5:41 am

Hi Dania,
I am glad you have decided to try again, I have been following your story! I thought you were not well enough for the journey. Are you going closer to home?
I am on the south shore of Montreal, st-hilaire. I will pm you, french is ok?

I have started warfarin (double doses) and injections last Tuesday (a week ago) but INR number does not increase to the normal range. I have to visit my GP this morning - AND HAVE A LECTURE AGAIN about having the procedure...

For people going out of the country make sure you will have follow up care when you return. I was in trouble after Poland for prescription and again this time for blood test.

I had hope more people answer this tread. The nurse said normally one year on coumadin but after stenting the Dr said 3 months???

Anybody with stent on coumadin/wafarin or on plavix?
for how long??
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