garyak was liberated today

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

garyak was liberated today

Postby garyak » Mon Sep 20, 2010 6:46 pm

I had my catheter venogram very early this morning at the Del Mar Vein clinic in San Diego.
I will go into more detail when I arrive back in Canada later this week.
Results showed my azygous to be healthy with normal blood flow.
My left IJV had borderline narrowing and was ballooned.
My right IJV was 70% narrowed in lower portion and was also ballooned.
Normally by this time of day (6:30 p.m.) after waking up at 5:30 a.m. I would be passed out and sleeping. This far into the day my fatigue is minimal. It is too early to tell if my lack of fatigue is from the procedure or just the high of finally having the procedure. It could also be due to meeting special guests that visited the Del Mar clinic today. Those guests were none other than Devin Hubbard, his wonderful mother, his incredible father- Dr. David Hubbard and Dr. Haake who were visiting.
Dr. Hubbard mentioned that over 80 IRs are now interested in his national IRB proposal. Cheerleader is visiting the Hubbard's tomorrow and I hope to meet her at the Hubbard Foundation when I get my follow up MRV there tomorrow.
I will end this note here as I am taking my beautiful wife, Tracy out for a nice dinner.
All the best, Gary.
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Postby Ali888 » Mon Sep 20, 2010 6:50 pm

Congratulations! I hope you see huge improvement!
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Postby dlb » Mon Sep 20, 2010 6:53 pm

Congrats Gary,

We were traveling home from Sicamous today. I had you in my thoughts all day, wondering how your procedure went! Hope you have continued improvements. I am very curious about the Hubbard Foundation, as I am in the scheduling process & have been communicating with Arlene lots as well!
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Postby prairiegirl » Mon Sep 20, 2010 7:21 pm

Thanks for posting this-- will look forward to reading your updates. Wish you continued improvements and all the very best!
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Postby PCakes » Mon Sep 20, 2010 7:22 pm

Congratulations Gary!!! sounds a wonderful evening :)..
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Postby Cece » Mon Sep 20, 2010 7:24 pm

Congrats garyak!!! I hope that fatigue stays gone! I also thought of you today.

Nice scoop on the eighty site applicants...did he give any indication if he has a set number of sites that he'd include? Or if eighty sites could meet the qualifications, would he approve all eighty? I'm also looking for any scoop, from anyone, on how soon the sites might be approved. This time my quest for info is personal; there are four sites near to me that have applied.
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Postby lovebug » Mon Sep 20, 2010 7:59 pm

All the best with a future of continued good health forever!!!!!!!! My turn is tomorrow in California..........
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Postby CRHInv » Mon Sep 20, 2010 8:04 pm

It is all such great news! Have a wonderful evening and I hope you enjoy the rest of your trip.
Take good care,
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby cheerleader » Mon Sep 20, 2010 8:33 pm

Hope we can meet up tomorrow while I'm visiting. Enjoy your new energy--it's a new day.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
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Postby Johnson » Mon Sep 20, 2010 11:02 pm

Welcome to your new life, Gary. I am very happy for you. Plus, you get to meet Cheerleader... Buy her a spritzer for me. (I'll pay you back later. Grin)
My name is not really Johnson. MSed up since 1993
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Postby ErikaSlovakia » Tue Sep 21, 2010 1:26 am

Good luck, Garyak!
Say hi to San Diego and to the ocean if you have a chance! :)
P.S. I hope to find out maybe soon what is wrong with me as there are more patients with very small or no improvements.
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby Blaze » Tue Sep 21, 2010 6:08 am

Fabulous news. Thanks for keeping us informed.
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Postby L » Tue Sep 21, 2010 8:37 am

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Postby Trish317 » Tue Sep 21, 2010 8:51 am

Sending you good thoughts for wonderful improvements and healing.
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Postby TMrox » Tue Sep 21, 2010 9:58 am

Congrats Gary,

Have a speedy recovery!!
Diagnosed with Transverse Myelitis in December 2008. Inflammatory demyelination of the spinal cord (c3-c5). No MS, but still CCSVI.
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