JCB's Liberation Journey PPMS

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Cece » Wed Oct 27, 2010 3:21 pm

Congrats, JCB! :) :)

Maybe tomorrow will be the second time in two years.
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Postby newlywed4ever » Wed Oct 27, 2010 7:31 pm

Way cool, JCB! - Sounds like a Halloween dream :o
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Postby JCB » Fri Nov 05, 2010 12:40 pm

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Postby David1949 » Fri Nov 05, 2010 1:42 pm

What does your neurologist do for you? Of course if you're taking the CRAB drugs you need the neuro for the Rx. But if you aren't taking them then what does the neuro do for you?
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Postby JCB » Fri Nov 05, 2010 1:54 pm

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Postby JCB » Mon Nov 22, 2010 10:48 am

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Postby NotFound » Mon Nov 22, 2010 12:11 pm

Good luck JCB!
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ccsvi

Postby blossom » Mon Nov 22, 2010 12:18 pm

the best to you jcb. sounds like your dr. is near you so that is a very good thing.
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Postby Trish317 » Mon Nov 22, 2010 8:09 pm

Sending you good thoughts and prayers. I think my darling man has also restenosed. He's having an ultrasound next month. I hope they know what they're doing and what they're looking for.
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Postby JCB » Thu Dec 30, 2010 12:42 pm

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Postby Cece » Thu Dec 30, 2010 12:58 pm

Coming at the stent from above - that's what Dr. Sclafani was talking about in his rendezvous procedure post. I hope it is very successful.
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ccsvi

Postby blossom » Thu Dec 30, 2010 7:15 pm

jcb so glad you are seeing improvements even slight ones are great in the whole scheme of things.

but sorry to hear of the clotting. it sounds like this dr. taking care of it is on the ball.

i am also ppms treated at albany no stents. actually got worse. would you mind if you know telling why the agyous was not treated in albany. also what drug plan you were put on. i'm glad to hear the dr.'s are now paying more attention to this very important part of liberation.

i have a feeling the agyous vein has more to do with us ppms. hopefully soon they will be able to better treat vein problems in the spine.

please keep us updated and know thoughts and prayers are being sent your way for safe and healing improvements.
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Postby Cece » Thu Dec 30, 2010 7:40 pm

Good question, blossom, I'd focused on the clot and missed that. How did the local doc find the azygous issue? Did he use any special technique, had he identified it on MRV before going in, did he identify it during the procedure?

A year ago I couldn't find anywhere to go to get treated. Now there are serious doctors here in MN and close-by in IL. Very happy.
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Postby JCB » Fri Jan 14, 2011 11:32 am

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Postby leetz » Fri Jan 14, 2011 10:55 pm

Wonderful you are for being a pioneer!! God will continue to bless....all of us...keep up the good fight!
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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