LDN and postliberation?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

LDN and postliberation?

Postby Nasti » Thu Sep 23, 2010 8:15 am

Those of you who were on LDN before the liberation procedure, has anyone gone off it after the surgery? Any noticeable changes? I am still on it, kind of scared to go off it, though my energy level kind of elevated after the surgery...
I would appreciate any feedback
thnx
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Postby Thekla » Thu Sep 23, 2010 8:20 am

I have stayed on it. I see no downside to it.
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Postby adamt » Thu Sep 23, 2010 8:58 am

since starting 2mg LDN 2.5 years ago i havent got any worse - doses above 2mg made me worse and quicker than usual progression for some reason,

i was liberated last month and stayed on LDN, lucky i did as i think i have re-stenosed,

its not worth the risk of stopping LDN in my opinion
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Stay on your drugs

Postby MarkW » Thu Sep 23, 2010 9:54 am

Please stay on your MS drugs after you are de-stenosed, especially if they are producing positive effects (follow Prof Z's advice). There is some logic for trying LDN after de-stenosis (say after 3 months) if you can get it easily.
Kind regards,
MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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Postby Shueywho » Thu Sep 23, 2010 10:02 am

Mark can you explain what the logic is for starting LDN after 3 months? My partner is having her procedure on Oct. 7th and is currently not on any dmd, but is considering going on LDN after. I would appreciate any insight you may have.

Thanks

Sheila
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LDN helps some people - no logic as why

Postby MarkW » Thu Sep 23, 2010 10:20 am

Hello Sheila,
3 months was a guess in order to allow changes from de-stenosis changes to be observed first (remylination might be just starting at 3m). There is not much science known about how de-stenosis or LDN actually work in MS. Add in people variability and its guesswork not science.
Kind regards,
MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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Postby Nasti » Sat Sep 25, 2010 2:01 pm

I actually wanted to test the effects of CCSVI without the LDN, I know LDN works, I don't know about CCSVI... But, it seems it is not worth testing :) thanx for the feedback
nasti
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