This Is MS Multiple Sclerosis Community: Knowledge & Support

just got off the operating room table. went in for the liberation procedure here in arizona. on the table and all set to go, the team of doctors doing the work decided that thru the imaging of the angiogram that i didnt have any blood restriction in my jugulars or azygos even thought they saw calcium in the azygos vein near the valve. they didnt do any ballooning and i more than sobered up when i heard the doctor saying words saying. "its a disappointment"

anyone else hear of the problem, calcium in the veins and no restrictions??? seems odd in so many ways to me. looking for second opinion soon, but while i wait for that, i thought id pass it along. thanks in advance all. much appreciated.

lee.

Hey Lee--
I am SO sorry. As you know, I'm not a doctor....I just play one on the internet. But your calcium in the veins got me searching. Apparently, this is a known problem, and it changes the flow in the veins, especially around the valves. These are called phleboliths, and they can impede blood flow. They can also cause venous stasis. They can show up in the pelvis (did they check your lumbar veins?) Maybe your azygos calcium is a sign of something going on in your lower veins, as well.

Dr. Zamboni wrote about the lumbar plexus/lumbar veins and even iliac veins being affected in some cases of MS...maybe share this idea with your docs- and see if they can get in touch with Dr. Gary Siskin in Albany to discuss. He has found May-Thurner and other lower venous issues.
http://onlinelibrary.wiley.com/doi/10.1 ... 3/abstract

Keep searching. Talk to your doctors about the lower veins. Hang in there. I know it's not easy being guinea pigs...Jeff made that really clear to me
take care,
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

I would assume it is similar to calcium deposits in the arteries--a neck x-ray showed I had calcium deposits in carotid artery, and an ultrasound of abdomen showed calcifications in abdominal arteries.
I changed my diet, and started calcium disodium EDTA infusions--
Am going on Oct 7 to have ultrasound of carotid and abdomen as follow-up; i asked for the tests, my dr thinks it is too early for the protocols to have worked, but did give me the scriipts--
I guess I just want some, even if minor, feedback before continuing with the EDTA--but of course I am continuing with the dietary changes (which includes supplements like Super K, etc).
I would think that a similar approach could help for the vein calcium deposits.
the Chelation is in lieu of any type of angioplasty.