MS doctors attacked for their skepticism

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby garyak » Sat Sep 25, 2010 5:11 pm

If Freedman was so smart and cared he would'nt ignore the hundreds and hundreds of Canadians that have been helped by venoplasty and accumulate all their pre treatment neuro consults and assessments and have a team compare those with all their post procedure assessments - doh ! So simple.
User avatar
garyak
Family Elder
 
Posts: 314
Joined: Sun May 30, 2010 3:00 pm
Location: grande prairie , alberta,canada

Advertisement

Postby beerduff » Sat Sep 25, 2010 8:03 pm

It is not what he is saying publicly that I would be worried about.
It is what he is saying privately and who is listening.
Do you wonder why Canada is in the backwoods for CCSVI treatment.
User avatar
beerduff
Family Member
 
Posts: 41
Joined: Tue Dec 22, 2009 4:00 pm
Location: Calgary AB

Postby 1eye » Sat Sep 25, 2010 11:07 pm

beerduff wrote:It is not what he is saying publicly that I would be worried about.
It is what he is saying privately and who is listening.
Do you wonder why Canada is in the backwoods for CCSVI treatment.


Yes. Word of mouth. There are many mouths saying these words. But soon some people may be outed by the fact that their mouths are the only ones left repeating them.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
User avatar
1eye
Family Elder
 
Posts: 2852
Joined: Wed Mar 17, 2010 4:00 pm
Location: Kanata, Ontario, Canada

Postby 1eye » Sun Sep 26, 2010 12:16 am

give voice to the quieter majority of patients who agree with their cautious approach.


I never thought I'd have the silent majority thrown in my face again. Or maybe because these people have 'MS' they are supposed to be 'quieter'.

This article promotes a number of myths about us 'MS' patients.

1. We are fools, who will accept blindly what the 'professionals' tell us, especially if we read it in the newspaper.

2. We are fearful. What is there to lose? Nothing else, nothing real is being offered.

3. We are desperate. I read this over and over, said by people who want to use it as a reason to dismiss what they don't want to hear. The ones who are getting desperate appear to be the ones who do science by sound-bite, by interview and by press conference. The slanted articles give the writers and the interviewees away. They sound desperate to me.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
User avatar
1eye
Family Elder
 
Posts: 2852
Joined: Wed Mar 17, 2010 4:00 pm
Location: Kanata, Ontario, Canada

Postby erinc14 » Sun Sep 26, 2010 5:49 am

They sound desperate to me.
:!:
_________________

i have no qualms throwing insults at him . he deserves it. people under his care have died though his bone marrow experiments and he takes not one iota of blame by saying he warned then . he is devoid of empathy and is obviously and pathetically trying to hang onto his power over people with MS. he's a classic psychopath .
User avatar
erinc14
Family Elder
 
Posts: 592
Joined: Sat Jun 12, 2010 3:00 pm
Location: Montreal

Postby cah » Sun Sep 26, 2010 6:14 am

1eye wrote:
give voice to the quieter majority of patients who agree with their cautious approach.


It's no better than conspiration theory to use a "quieter majority" as a justification. How can he know about what the majority thinks? What his patients told him? Well, that's anectdotal! :P

I can contribute other anecdotes: From personal emails, I know that there are "quieter" neurologists who would prefer a far less "cautious" approach: Throughout research asap. Don't think they are a majority, but the opinion of Dr. Freedman is definitely not the opinion of the neurologists altogether. But it looks like that's what he thinks.
"There is only one good, knowledge, and one evil, ignorance." Socrates
User avatar
cah
Family Elder
 
Posts: 336
Joined: Tue Oct 27, 2009 4:00 pm
Location: Germany

Postby scorpion » Sun Sep 26, 2010 6:25 am

beerduff wrote:It is not what he is saying publicly that I would be worried about.
It is what he is saying privately and who is listening.
Do you wonder why Canada is in the backwoods for CCSVI treatment.


I think he is sending subliminal messages via our injectable needles. 8O I must say Ericnc14 you have a special gift as well as many others on here do. Your ability to know the thoughts, feelings, and emotions of someone that you have never met or spoken to before is absolutely incredible. I am sure Dr. Freedman's life revolves around CCSVI. After 25 years of MS research, and I am sure what is a comfortable living, he has now made it his sole purpose in life to stop the spread of the CCSVI plague. sigh... In all seriousness though having MS has helped me understand that life for me may be shorter than I anticipated and I have made the decision that my "story" on earth is not going to be one of anger and hate. If you guys feel that making this gentleman's life hell is what you need to do, than by all means continue spewing anger at him. We will all leave behind our own legacies. :)
User avatar
scorpion
Family Elder
 
Posts: 1323
Joined: Wed Nov 05, 2008 4:00 pm

Postby erinc14 » Sun Sep 26, 2010 7:20 am

what's nice is that we're all entitled to our own opinions .
User avatar
erinc14
Family Elder
 
Posts: 592
Joined: Sat Jun 12, 2010 3:00 pm
Location: Montreal

Postby scorpion » Sun Sep 26, 2010 8:00 am

erinc14 wrote:what's nice is that we're all entitled to our own opinions .


That we can agree on!
User avatar
scorpion
Family Elder
 
Posts: 1323
Joined: Wed Nov 05, 2008 4:00 pm

Postby Lyon » Sun Sep 26, 2010 8:41 am

.
Last edited by Lyon on Sun Nov 20, 2011 6:13 pm, edited 2 times in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

Postby 1eye » Sun Sep 26, 2010 10:53 am

Mark Freedman was unprepared for the onslaught of hate.


Well, I have seen/heard onslaughts, and this one is tame. I would feel lucky to have got away with only this. But as one of the most vocal of people working hard to prevent any progress of Liberation, he is as guilty as anyone of the untimely deaths of people who were on waiting lists for this procedure. These people, the dead, have had their human right to life violated. I don't feel sorry for anyone who has been very deliberate in trying to prevent this procedure from happening.

I don't hate them. But I sure don't like them either. If one of members of the panel walked in front of me, I would not spit. Words like snake, vermin, or killer would not cross my lips. I would not shout out my very very low opinion of them. I would likely have tears in my eyes. That is due to the pseudo bulbar affect, and nothing those people did. But if I were ever to have the chance, I would see they did not profit from their vile, offensive, harmful words. You can fool some of the Health Ministers some of the time, I guess. Some words are very costly.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
User avatar
1eye
Family Elder
 
Posts: 2852
Joined: Wed Mar 17, 2010 4:00 pm
Location: Kanata, Ontario, Canada

Postby Lyon » Sun Sep 26, 2010 11:07 am

.
Last edited by Lyon on Sun Nov 20, 2011 6:12 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

Postby ozarkcanoer » Sun Sep 26, 2010 12:57 pm

Ah, Lyon, in some strange way we are kindred souls.

ozarkcanoer
User avatar
ozarkcanoer
Family Elder
 
Posts: 1273
Joined: Thu Oct 15, 2009 3:00 pm
Location: St. Louis, Missouri

Postby Lyon » Sun Sep 26, 2010 1:36 pm

.
Last edited by Lyon on Sun Nov 20, 2011 6:12 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

Postby patientx » Sun Sep 26, 2010 2:59 pm

ozarkcanoer wrote:Ah, Lyon, in some strange way we are kindred souls.

ozarkcanoer

Care to elaborate?
User avatar
patientx
Family Elder
 
Posts: 1068
Joined: Wed Sep 10, 2008 3:00 pm

PreviousNext

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users