Aboutm and ccsvi

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Aboutm and ccsvi

Postby deo974 » Sat Sep 25, 2010 7:55 pm

Hello, i'm new on ThisisMs :arrow:
i'm french and read articles about this terrible disease'(diagnosed since 2004) Sometimes i'm good, sometimes i cant walk so i hope for new treatment,
iI'm a webmaster and I have done this website for informations and more.
It is in french language but you can't choose to translate the site by using the choosing language box at the right and some videos are in english.

This site is to make discover the MS at the most people to stop or to help people like us(patients....be patients...)

Discussions in all languages are the welcome on this site don't hesitate to join. Thanks a lot

Etienne
The adress http://www.sep974.info

PS: i'm searching reviews about Ampyra(dalfampridine) treatment, i've read lot of benefits about this new drug, thanks to give me advices(unfortunatlt this drug don't be in europe market before the end of 2011). If this one one is a good cure i'll search the way to have it before. Thanks again.


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Re: Aboutm and ccsvi

Postby CureOrBust » Sun Sep 26, 2010 4:25 am

deo974 wrote:PS: i'm searching reviews about Ampyra(dalfampridine) treatment, i've read lot of benefits about this new drug, thanks to give me advices(unfortunatlt this drug don't be in europe market before the end of 2011). If this one one is a good cure i'll search the way to have it before.
Fampradine is NOT a cure. It temporarily relieves some symptoms. It is a commercial product of a drug many (including myself) have had compounded by a compounding pharmacist. ie you may not need to wait for it, you may be able to get it now.
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Re: Aboutm and ccsvi

Postby deo974 » Sun Sep 26, 2010 5:35 am

CureOrBust wrote:
deo974 wrote:PS: i'm searching reviews about Ampyra(dalfampridine) treatment, i've read lot of benefits about this new drug, thanks to give me advices(unfortunatlt this drug don't be in europe market before the end of 2011). If this one one is a good cure i'll search the way to have it before.
Fampradine is NOT a cure. It temporarily relieves some symptoms. It is a commercial product of a drug many (including myself) have had compounded by a compounding pharmacist. ie you may not need to wait for it, you may be able to get it now.


Thank you, what do you mean when you say "temporarly", i see my neurologist at the end of the month i will ask him how to have it.
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Postby Algis » Sun Sep 26, 2010 9:51 pm

http://www.psychomedia.qc.ca/pn/modules ... e&sid=6668

Fais une recherche sur 4-AP (aminopyridine). Un pharmacien peut te faire le médicament qui est "générique" (n'est plus sujet à des licenses commerciales).

Bonne chance!!
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