CureIt wrote:So once again, to confirm: there are 3 ways to determine if someone has CCSVI: Doppler Ultrasound, MRV and Venography. Those are 3 different things, correct?
So would it be safe to say, that Doppler ultrasound is good enough test to determine whether or not someone could be suffering from CCSVI? How important would it be to have MRV done too? Do these two accomplish the same task with similar accuracy?
Is it safe to say that venography (third method) is unnecessary until you actually go for the liberation procedure?
Yes, three different things. I refer to the third as 'Catheter venogram' to avoid confusion with the second (MRV, which is an MRI of the veins).
The Doppler ultrasound is the only imaging that was used by Zamboni in his original research. It is hard to say which of the MRV or the doppler ultrasound is more accurate, although of the two I'd go with the doppler in the hands of a trained expert. They measure slightly different things but both are useful. Neither are conclusive: if the MRV or the doppler ultrasound both come up clear for CCSVI, a catheter venogram may still turn up CCSVI and has for some people here.
Some doctors, notably Dr. Siskin for patients travelling in, dispense with the imaging altogether and go straight for the catheter venogram.
The ratio of people with MS who also have CCSVI seems to be extremely high, from both all the reports here and Dr. Zamboni's original research.
Nearly all Canadians who have been treated have had to travel to get treated. Is your father capable of travel? One way to go at this is to pick the doctor you'd have him travel to and then find out if the imaging is included in the package or if the doctor will accept imaging done from another clinic.
Best wishes and welcome to the site!