OHIP no longer paying for CCSVI testing?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

OHIP no longer paying for CCSVI testing?

Postby Kleiner » Tue Sep 28, 2010 5:46 am

I recently had my doctor refer me to Port Perry for testing. I received a call from them yesterday saying that OHIP was no longer paying for the testing and that I would have to pay $250. My aunt just had the testing performed 2 weeks ago and it was covered. Just wondering what anyone else knows about this. Thanks.
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Postby CureIt » Tue Sep 28, 2010 6:05 am

They told me the same thing when I asked whether or not OHIP was covering the test yesterday, so rules may have changed. When I called in Barrie however, the said they did not charge for the test, but I do not know whether they do it for free for research of OHIP covers their expenses.

Best of luck to you.
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Postby scotland » Tue Sep 28, 2010 8:47 am

Hi
Had mine done in Barrie Aug 30th and ohip pais for it .
Scotland
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Postby 1eye » Tue Sep 28, 2010 10:09 am

I hope this is some faceless bureaucrat or bean-counter, but I expect who is behind this is the rogue neurology contingent again. It seems no action is too creepy, too small-minded, or too stupid.

I am listening to the radio broadcast with Dr. McDonald. I think someone needs to, as he put it "get off the pot." I was tested as part of my follow-up, in Barrie, a few days ago. The cost of this testing, for the patient, is not great.

It sounds like a direct attack on the likes of him. Why? This is the most ridiculous, deliberately annoying and counter-productive thing I have ever heard of the government doing.

The federal Liberals, with Dr. Duncan, are showing some leadership. Why in the world would the provincial Liberals be so petty? I thought it was a *good* thing getting rid of the provincial Conservatives.

Listen: this disease kills people. One Canadian a day on average dies from this. Doctors like Dr. Freedman ought to be trying to save their lives. The attitude seems to be that they want to go back to the days of 'diagnose and adios'. These patients are being abandoned because there is no drug treatment for progressing 'MS'. Plain and simple. They are being allowed to die.

Let me repeat that. They are being allowed to die, regardless of how they themselves, or their loved ones, might feel about it. One of the first things that influential document, the American Declaration of Independence says, is that people have the right to life. This has been reiterated in rights declarations everywhere. If you were born a human, you have that right.

Unless you have 'MS'. Then the Liberation treatment, a simple venoplasty, will not be offered, even if you are one of those one per day of Canadians who dies. This is not what our fathers fought wars and died for. This is a travesty of justice and of medicine, no less. People who fight it, regardless of whether some clinical trial has proven it to some nay-sayers, anonymous or not. For God's sake, the placebo treatment here would be death. Does anyone want to comment on the power of the mind? Tell it to the survivors.

Are there no leaders, left in this democracy?
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby sbr487 » Tue Sep 28, 2010 10:21 am

Well put, 1eye.
A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck
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Postby hlm286 » Tue Sep 28, 2010 11:38 am

I just called the port perry location maybe over a week ago and was told OHIP covers it. I was put on a waiting list though.

I also called Barrie and was told that I need a referral sent in, I can't just be put on a waiting list, and that OHIP does not cover it, but the doctor covers the cost? (I didn't quite understand that, but was basically told that there was no fee to me anyhow) They had a wait of over a year though I think.
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Postby Kleiner » Tue Sep 28, 2010 12:48 pm

hlm286 wrote:I just called the port perry location maybe over a week ago and was told OHIP covers it. I was put on a waiting list though.

I also called Barrie and was told that I need a referral sent in, I can't just be put on a waiting list, and that OHIP does not cover it, but the doctor covers the cost? (I didn't quite understand that, but was basically told that there was no fee to me anyhow) They had a wait of over a year though I think.


I was under the impression from talking to Port Perry that it was covered until I spoke with them yesterday. Something must have changed because I don't think they are booking the tests during their normal operating hours, either. They are setting up special times to have these tests completed...I missed a call last Friday to go in for the test on Saturday...so not 100% sure what is going on there...

My aunt was tested there 2 weeks ago and was covered and another friend was tested about a month and a half ago and it was covered...
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Postby Shea » Tue Sep 28, 2010 6:33 pm

I called Port Perry today and the cost is $250.00 for CCSVI testing even if you have an appt. booked! Barrie has a long waiting list but there is no cost.
:(
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