my first time

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

my first time

Postby Puma » Wed Sep 29, 2010 6:48 am

Hello,
I new one, ill and I need help. I want to have operation I heard about Euromedic and Ameds. Which one is better. Please, please help me and send some info.

Many thanks
Puma :wink:
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Postby TMrox » Wed Sep 29, 2010 8:19 am

Hi Puma,

I'm not sure which one is better. But I know Simka is very active in the CCSVI community and has lots of experience.

In addition to judging by experience, I would suggest going to your nearest vascular expert. If you are based in Europe, then Polish and a few other european clinics are a good posibility. If you are in North America there are good clinics there, the Hubbard foundation as well.

If you have to travel 15 hours on a plane to see your doctor, how often will you have your follow ups? What if after angio you develop a blood clot, or think you have restenosed. Going local or to the nearest vascular expert is the best option.

I could not get treated in the UK. So I had to travel 3 hours on a plane to see my vascular doc. That is as local as it gets for me.

Kindly,
Rox
Diagnosed with Transverse Myelitis in December 2008. Inflammatory demyelination of the spinal cord (c3-c5). No MS, but still CCSVI.
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Postby Puma » Fri Oct 01, 2010 1:17 am

Hi,
Thank you very much. The ting is of most important to me. I have to think it over and decide.
Again many thanks

Puma
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Postby Rici » Sun Oct 03, 2010 6:06 am

Welcome Puma,

Keep your decision a few days - the new and important information will come soon.

Rici
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Postby joge » Mon Oct 04, 2010 12:12 am

?? 'the new and important information..??

did I miss somesthing?
I'm ready, I'm ready !
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Postby Algis » Mon Oct 04, 2010 12:23 am

did I miss somesthing?


I was about to ask that :roll:
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Postby Johnson » Mon Oct 04, 2010 1:26 am

I believe that Rici is going for a second try at valve reconstruction soon. I have not exchanged e-mails with him for a while (I've been up to my neck in narwhals), so that is just a guess.
My name is not really Johnson. MSed up since 1993
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Re: my first time

Postby mila77 » Mon Oct 04, 2010 7:42 am

Puma wrote:Hello,
I new one, ill and I need help. I want to have operation I heard about Euromedic and Ameds. Which one is better. Please, please help me and send some info.

Many thanks
Puma :wink:


Hi Puma,

I have seen how both of those clinics operate. Euromedic is definitely more experienced, they have started earlier dealing with CCSVI, however in terms of patient experience Ameds was much more professional.
Unfortunately Euromedic does not have all the examination at one place so you would have to be prepared to travel to different locations for ultrasound, MRV, eye-exam and the procedure itself, whereas Ameds has all the services in one hospital. Of course Euromedic arrange all the transfers for foreign patients so maybe it is not such a big deal.
Moreover, all personnel at Ameds speaks English and I have heard that in Euromedic nurses do not (however, I did not check it because I am Polish).

Don't get me wrong I have nothing against Euromedic, people are nice there, everything is ok but my personal patient experience at Ameds was much better. I had more time with docs and could discuss all my questions, I didnt feel like everything is in the hurry, I didnt have to wait for 2 hours for my pre-scheduled appointment. Those are the details, but they influence my opinion.

Wish you luck with the choice
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Postby Puma » Mon Oct 04, 2010 12:56 pm

Hi everybody,

I thank you very much specialy you Mila. Rici I thank you very much too, but I do not know what is all about.
Thanks again
Greeting
Puma
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Postby Rici » Mon Oct 04, 2010 3:31 pm

As I wrote I ask you to be patient. Soon I will contact you.
Greetings
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