MS patients with a different message

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

MS patients with a different message

Postby scorpion » Thu Sep 30, 2010 11:07 am

User avatar
scorpion
Family Elder
 
Posts: 1323
Joined: Wed Nov 05, 2008 4:00 pm

Advertisement

Postby ikulo » Thu Sep 30, 2010 11:26 am

Thanks for posting this. Now that Wente is covering CCSVI we know we've made it big time! Such an article is to be expected from Margaret Wente as her bread and butter is creating controversy.

In any case, if anything this article confirms that money should be spent on this treatment in Canada. The second PwMS in the article had to travel all the way to India to be treated in a clinic he claims had lax standards. Canada should be ashamed that it forces its citizens to use such poor facilities.
User avatar
ikulo
Family Elder
 
Posts: 445
Joined: Tue Aug 04, 2009 3:00 pm
Location: colorado

Postby MrSuccess » Thu Sep 30, 2010 1:45 pm

one must read the wisdom of Aesop and his tale of The Fox and the grapes .

It's only Human nature being displayed .




Mr. Success
User avatar
MrSuccess
Family Elder
 
Posts: 883
Joined: Fri Sep 18, 2009 3:00 pm

Postby Vivianne766 » Thu Sep 30, 2010 3:17 pm

just got an idea of what the article is. Read some of the comments......
... some idiot does not want to do the treatment because of the name "Liberation".
How stupid. A real patient will do research and decide based on the facts.
Don't do the treatment you moran. Nobody's twisting your arm.
...

BTW I'll be liberated soon.

:)
User avatar
Vivianne766
Family Elder
 
Posts: 157
Joined: Sun Mar 07, 2010 4:00 pm

Postby scorpion » Thu Sep 30, 2010 3:56 pm

User avatar
scorpion
Family Elder
 
Posts: 1323
Joined: Wed Nov 05, 2008 4:00 pm

Postby concerned » Thu Sep 30, 2010 4:27 pm

Vivianne766 wrote:Don't do the treatment you moran.
...

:)


You could have just said "Don't do the treatment then".........
concerned
 

Postby whyRwehere » Fri Oct 01, 2010 1:20 am

I don't think you can compare that "stem cell doctor" with the better IRs/Vascular surgeons. He was telling his patients, that he was putting in human stem cells, when that turned out not to be the case:
From the BBC
"They were all vulnerable patients who already found themselves failed by the medical profession in this country and as a result were searching, some with desperation, for a cure or relief elsewhere, which is why and how they ended up in Dr Trossel's hands," Mr Kark told the haering.

"They were given false hope by him and the experience not only cost them financially but for the most part it caused them personal and emotional loss when they realised that the treatment provided to them was not only expensive but pointless."

The treatment also contained bovine brain and spinal cord, and the GMC panel ruled he had abused his position as a doctor by failing to warn patients about potential risks of vCJD.


I agree that some of these clinics opening up are dubious, but the doctor who worked on my husband, for instance seems to be driven more by discovery than money...she is not advertising "packages". I believe she has started a study and I look forward to hearing what she might learn. At this point, if my husband was not so disabled, I would wait a year to have anything done. We don't have the time to wait, unfortunately, but that doesn't mean I would trust him to any doctor either. People do need to think about this before they go ahead, and whether or not they could cope with a clot situation, which seems to be happening a lot.
User avatar
whyRwehere
Family Elder
 
Posts: 907
Joined: Mon Oct 03, 2005 3:00 pm


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users