Clot in Stent!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

clot

Postby Peaches1 » Sun Oct 10, 2010 6:39 pm

Update - I am going back to NY this Wed, angio Thurs AM to get clot.
I will be back on Comadin soon after, with see a local cardio for reg blood test and maintance.

I told the doc my local doc and myself sort of dropped the ball because when I got back home, we didn't address the anti cardiolipid antibodies that I have, know better next time.

I will let you know when I get back home for another update.
Thanks all
Mino/Copaxone, IVIG
LDN, Prokarin
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Postby KDGO » Mon Oct 11, 2010 6:39 am

Best of luck to you this week. Looking forward to continue reading your story.
Please note to bring warm clothes! It is getting chilly up here.
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Chilly

Postby Peaches1 » Mon Oct 11, 2010 9:00 am

Thanks for the tip, it is still hot here in TX, cools off at night. Still flip flops and shorts here, packing and pulling out sweaters, boots
Mino/Copaxone, IVIG
LDN, Prokarin
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Postby pklittle » Fri Oct 15, 2010 8:19 pm

Has anyone heard from Peaches since she had treatment on Thursday?
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clot update

Postby Peaches1 » Sun Oct 17, 2010 9:47 am

I just got back from seeing Dr S in NY. He tried to get the clot but couldn't
:cry: He tried numerous wires or whatever they use but he couldn't get past the clot. He said he had 2 other ones where he was more aggressive and went above the clot (throught the outside of the neck) to get the clot from above it. He said later they still produced clots so he is hesitate to treat me the same way.
So I am kinda of bummed that he couldn't remove it.
He hasn't had that many ones come back with clots.
Am I that special?
Mino/Copaxone, IVIG
LDN, Prokarin
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Peaches1
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Joined: Wed Nov 25, 2009 4:00 pm
Location: Texas

Re: clot update

Postby pklittle » Mon Oct 18, 2010 8:07 am

Peaches1 wrote:I just got back from seeing Dr S in NY. He tried to get the clot but couldn't
:cry: He tried numerous wires or whatever they use but he couldn't get past the clot. He said he had 2 other ones where he was more aggressive and went above the clot (throught the outside of the neck) to get the clot from above it. He said later they still produced clots so he is hesitate to treat me the same way.
So I am kinda of bummed that he couldn't remove it.
He hasn't had that many ones come back with clots.
Am I that special?


Sorry to hear he couldn't get the clot out. Hang in there. Perhaps a second opinion might help?
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