I think that there is more to this than we first think. There must be a balancing effect that occurs. My personal experience was to have the headaches after the lumbar punch (for 6-8 weeks). That only explains the low CSF if it changes in any other way there must be an imbalance in the system.
At present I am reading your book Dr F and finding it very enlightening. I am 51 years Male and have had definite MS type symptoms for about 5 years. At the onset of my symptoms I was having pains in both shoulders and under investigation both sides rotator cuffs were torn, found after xrays and ultra sound. During the treatment the MS symptoms occurred. Ironically I could not remember 'tearing' the rotator cuffs although I had been lifting heavy beams with my shoulders and head neck to support then in position. Totally wrong thing to do and in hind sight could have done allot of damage in the neck area. In my youth (13-20 years old) I played Rugby and was a hooker, (center front of scrum) and often had neck injuries and once carried off to hospital suspected broken neck, turned out to be badly strained from the collapse of a scrum. I was spending time weekly having Chiropractic adjustments to free up and stop neck pain. Fortunately I stopped playing.
I have throughout my working career had back and neck problems and to compound I was working as a mechanic, leaning over cars all day. I worked for a period of time driving Jet Boats in the tourist industry for 6 years and had a lower back 'slipped' disc injury from the jarring of driving on a hard seat. I moved into management and office related work it the latter years. So all in all I have worn out much of my spine, and been told I have disc degeneration in three areas.
In 2008 when they were trying to find a reason for my L'Hermittes symptom, numbness in my right foot, fatigue, eye blurring, progressive sensory reduction complaints, heat intolerance, weakness in limbs, balance issues, sensory changes in torso, bladder frequency, cognitive issues/confusion
The MRI done in 2008;
With respect to the spine, there is a linear area of increased T2 signal within the dorsal aspect of the cervical cord at the C2 level measuring around 16mm in length. No cord expansion is identified and there is no increased signal on post contrast T1 imaging.There is a right paracentral protrusion of the C6/7 disc which encroaches on the right C6/7 neural foramen. There is osteophyte formation directed posteriorly about the C5/6 disc which mildly indents the thecal sac, but there is no evidence of cord compression or CSF effacement. There is narrowing of the L5/S1 disc with posteriorly directed osteophytes and a generalised posterior bulge of the disc which indents the thecal sac. The transiting S1 nerve roots appear deviated slightly posteriorly but there is no definite compression. A small caverous haemangioma in the T2 vertebral body. Summary: Two white matter hyperintensities have developed on the left side as described since the previous scan of 12 months ago, There is a stable hyperintensity in the dorsal aspect of the clevical cord as described.
Many years ago I was told I have left leg shorter by 22mm and worn a wedge in the last couple of years, the wedge is a 9mm one.
Since having this MRI I have now been told I have probable MS. I personally believe that it is PPMS as there has been no relapses or remissions. I am naturally interested in CCSVI and the Vascular involvement in MS and read allot of research and data on MS. I believe that there is a link to my MS from both Vascular and Spine alignment in my case. I had several Craniosacral Therapy sessions at which time the therapist said there appears to be a restriction in the flow in the upper thorasic /clevical region.
In putting my picture together I am of the opinion that I am better to wait for the Vascular knowledge to advance. I am also of the opinion that my health could be better if I could find an Upper Clevical Chiropractor. The man I see now days is a sports and general chiro, the Chiropractors here tend to believe they are qualified to treat any area of the body, and that there is no need for specialist Chiropractic work. Do you know of anyone in NZ I could see, preferably in the North Island? Can you offer any insights from reading my brief as well please.
And I must add thank you for making yourselves available to our community of PwMS.