Cece wrote:I checked back to see if drsclafani had weighed in on the idea of overdraining, this was what I found:
I would have to research exactly what keeps CSF separate from the regular blood stream. In CCSVI the blockages are abnormal and the venoplasty restores them to what is normal. The normal state of free-flowing cerebral venous drainage does not negatively impact CSF in healthy individuals. Also in a spinal tap, some CSF is removed. After I had this, I developed the really painful post-lumbar headache that goes away as the CSF restores itself. If this were truly a concern, I think we'd be hearing a lot of reports of that sort of headache. It's a rather unmistakable headache.
This is meant in all due respect and in hopes of figuring this all out.
Cece, this is interesting to say the least. Thanks for digging it up!
It surely indicates that we are in the middle of different opinions and even more, the need for solid conclusions. This can only happen when physicians collaborate and the way I see it, Dr Flanagan's initiative to talk with Haacke is a step to the right direction.
As for Dr Sclafani's note, I am not sure what brain's over drainage might or might not result into. I know that some of us got worse after the angio though and it's kind of difficult for one not to start wondering. And I am not talking restenosis but immediate worsening. Rici's case comes in mind for instance. His wide jugular is giving him "turbo ms" as he says. Of course his valve has been destroyed also during the angioplasty and this might be the real issue. Whether there is over drainage, back jets or both remains to be seen after his vein replacement surgery.
Maybe it has something to do with already damaged nerves being affected by the altered blood flow. I must admit that Dr Sclafani's statement sounds logical though and this is giving me a headache. Everything sounds logical!!!!
drsclafani wrote:But then if stents are placed in jugular(s); too much blood (?) is drained out of the brain during daytime (standing/seated), stents preventing their collapse Question (not sure I express myself correctly here, pardon me)
you express yourself quite clearly to me, thank you very much.
i would not worry about blood draining too fast from the brain. the limiting factor of draining the brain is what goes in. the capillary between the artery and the vein is the limiting factor in getting the blood out.
Also the stent is placed where the n arrowing of the veins is. the remainder of the vein, i would presume, will still collapse when you stand up.
hope this helps
uprightdoc wrote:over drainage of the brain can be even more catastrophic than a clogged brain. The brain needs water for cushioning and support. The impact of venous drainage on CSF volume and brain support is in fact one of the issues I would like to discuss with Dr. Haake. In certain cases the CSF pressure gradient can be improved by angioplasty and stents. In other cases it may be impaired or made worse. Even so, it appears to be helping more people than not, and while it may be contraindicated in certain cases, I don't think we are far from figuring out which ones. We just need to put all our heads together and work through all this new information. We are on the right track.